I read with much interest the posts, peoples symptoms, platelet counts, side effects etc
What I am really annoyed about is the fact that I have been diagnosed with ET at 63, from a routine blood test in February. Sept I was put on hydroxycarbamide. I had no symptoms, I am fit and well, exercise regularly, eat well, ski, play tennis,gym etc etc. I had a BUPA privatemedical 14 years ago when I was 50, and the other day I looked at the paperwork. I had high platelet count of 498 14 years ago, this was not mentioned to me, it was apparently passed to my GP who again never mentioned a thing. So I really wonder how many years my platelet count has been at 900!!!!
I really do not know what to think, 're this ET and hydroxy, I also take aspirin, but am very very confused with it all. I now feel worse than I ever did, fatigued, look drained, itchy skin. As anyone else just jacked the whole hydroxy thing in?
Anybody else in the same situation.?
I just hope the researchers find something to kill this JAK2 gene.