Well You Don't Look Sick: One of the most popular... - MPN Voice

MPN Voice

10,445 members14,398 posts

Well You Don't Look Sick

PVReporter profile image
6 Replies

One of the most popular articles ever on PV Reporter. I wrote it in the first few months, it holds true as ever today! Feel free to share it - pvreporter.com/well-you-don...

Best,

David

Written by
PVReporter profile image
PVReporter
To view profiles and participate in discussions please or .
6 Replies
Helpatlast profile image
Helpatlast

Brilliant David thank you - I have stored that on my home screen and will now pass it on to anyone who next says that to me!! So well put by - whenever I have attended a MPN Day the two things every patient says are most hard to deal with are the fatigue - and people saying but you look so well!! Thanks for passing your article on.

Aime profile image
Aime

So true! So infuriating, especially if you’re feeling crap at the time! Kindest regards Aime xx😾😾😾😾😾😾😾😾

mammared profile image
mammared

Thank you David. I appreciate your writings. This is well done.

PVReporter profile image
PVReporter

Thanks ya'll for the kind word. That's one many of us can all relate to ;)

mustabshra profile image
mustabshra

Very well written. I feel u are speaking my heart out here in ur article.It is so frustratinf wen people cant see beyond our well groomed "looking fine" . My family members do not seem to understand how much I suffer bcz of this illness.

PVReporter profile image
PVReporter in reply to mustabshra

Thank you....yes I totally understand your frustration.

You may also like...

You look really well !

people say you look really well, its that thing when you have a broken leg , it can be seen you...

How old were you when you were diagnosed and how old are you now?

curious to know when you were diagnosed with MPN, what kind you have and how old you are now. It is...

ET and altitude sickness

of contracting altitude sickness more or not. I am a bit anaemic now as well so this wont help....

How do you cope with the fatigue.

tolerate most of the symptoms but the fatigue which has been awful for the best part of 8 months...

Well, a bit of great news

Easy jet by the way, so if you fly out of Luton and Captain Burnham welcomes you onboard - he...