This is worth a look

[Ovingite]

Hi all,

I am still fairly new to ET and pretty illiterate when it comes to the workings of the human body, so I have been trying to educate myself to better understand what is happening. In my searches I happened across a really helpful YouTube video of an on-line lecture by Khan University Medical (USA) explaining MPN's in general and ET in particular. It is a couple of years old and so refers to MPD rather than MPN and it seems to predate the use of DNA to confirm JAK2 mutation, but for me it was an enlightening experience that I would recommend to anyone new to ET - and maybe a few 'old hands' too?

The link to the YouTube video is here:

youtube.com/watch?v=1CYd9De...(Not working as expected?)

There are also other lectures in the same series to cover:

- MPDs in general youtube.com/watch?v=WL3CZvI...(Not working as expected?)

- Primary myelofibrosis youtube.com/watch?v=T8AtHWY...(Not working as expected?)

- PV youtube.com/watch?v=tuYwvFv...(Not working as expected?)

- Chronic Myelogenous Leukemia youtube.com/watch?v=dIaJPXt...(Not working as expected?)

I hope to see some of you at next week's Forum, but in the meantime Happy Viewing!

John

[mhos61]

Hi John,

Thanks for posting this. I think I’ve come across the ET one before, it is extremely informative. Will take a look again though!

Hope you enjoy the Forum on Saturday. I’d loved to have gone, but unfortunately we have got family staying with us for a week.

[dgk70]

Hi John ,Thanks for posting the YouTube about ET , I found it very helpful and a little scary, lol ,

Take care

Darren

[eire]

This was so informative was up at 5 am and all of a sudden it's now 8 am. Thanks for the post.

[socrates_8]

Thanks John..

All for a greater appreciation & understanding of our various MPNs.

Steve

(Sydney)

[CLIFFE]

Only recently diagnosed with ET and these videos meant alot thank you it has made me understand what is happening in my body alot more thanks again

[Paul123456]

This is also interesting if not already posted. Advices early Interferon over all other options.

Sounds convincing but other experts must have different opinions.

youtu.be/M6yVH8WFQeg(Not working as expected?)

[Dora1971]

These are so interesting. Thank you so much for sharing

[Tinkerbell13]

So grateful, immensely informative and helpful, most grateful to you for sharing this....best wishes, Tinkerbell

[Jerrymohler]

Anybody else notice the use of the term 'disorder' rather than neoplasm? MPD vs MPN. Not seeing a chronic malignant hematopathy and not calling it the 'C' word?

[Ovingite]

Hi Jerry. Yes I did, but I put it down to the fact that it is several years old and probably predates the new concencus of MPN and cancer.

[CurlyKale]

Thanks for the you tube video. It's a good summary and I've kept the link so that if family ask i can send them the link, rather than explain it myself. I think it would be useful for my parents to feel that they know what it's all about.