Hi Guys, just wanted some second opinions from those who have PV and have moved from venesection only to some of the more serious meds. My blood counts at the moment are okay but my iron levels are low and stay low with venesections. I had an arm op back in July and although everything has healed and I’ve had a big improvement in the pins and needles, I cannot get my energy levels back up. I’ve tried following some of my own advice re fluids, healthy foods, rest and exercise but can’t seem to raise myself up from this prolonged bout of fatigue.
I just wanted to ask: at what point is the decision made to change to meds and what are the reasons for this decision being made? I don’t want to start meds but my quality of life as far as going out and doing things isn’t great at the moment.
Thank you, kindest regards Aime xx😾😾