Peg results

[Mackydee123]

Evening all!

So I had my first blood count since starting on Peg (4 weeks) and I have to say I’m delighted!

My platelets have dropped from 1073 to 800! That’s only 3 injections as I do the 4th one this evening! No real side effects to speak of. I didn’t get to see Cns today but I was with her reg nurse and she was very impressed with the results! I find out tomorrow if I’m staying on 45mcg or moving up to 90mcg.

I was not expecting results so quickly! I’m definitely feeling more alert during the day and generally well. It could be a mixture of the Peg, the B12 and I’ve been trying CBD vape oil too...not to forget a glass of wine or 2 of an evening 🍷😁

Hope everyone is keeping well!

Kerry

[Poppy112]

Very pleased for you. It is certainly helping me as well, in 6mths since starting Interferon my platelets have dropped from 1000 to 290, HCT 49 to 40 and WBC 17 to 6. I was on 90mcg but was still experiencing some inflammation in my legs so I have been reduced to 45mcg and so far so good. Really hope it keeps working so well and look forward to your further updates.

Jen

[Mackydee123 in reply to Poppy112]

Wow! 290? That’s amazing Jen! As far as I know Platelets are the only thing I have that are high, HCT and WBC have yet to increase notably, in fact they’ve never been discussed with me, apart from the very first consultation when I was told they were fine.

I honestly do feel better, here’s hoping it continues!

Kerry

[zvinkovic]

Glad to see you have so much success using Pegasys. I have been on regular interferon for the last 14 years as here in Croatia Pegasys is not approved for ET. I am hoping all those success stories will lead to Pegasys becoming first line treatment so it would be available to everyone.

Keep us posted, I hope the good results will continue.

Zlata

[Mackydee123 in reply to zvinkovic]

Thanks Zlata!

I didn’t think I was going to get it here in Northern Ireland but my new Cns heads up the clinical trial unit and has no bother getting it. It’s my first time on meds other than aspirin so I was nervous but desperate to get proactive too. So far so good! I’ll keep ya all posted!

I know some people can’t take to Peg at all but so far I have taken to it well. I hope you guys get it soon 👍

Best wishes

Kerry

[ihavegotet in reply to Mackydee123]

I am loving Peg. Started at 1.4 million and down to 330 in 3.5 months!

[Mackydee123 in reply to ihavegotet]

Wow!! That’s amazing!! Do you feel like your normal self again? Energy levels and that? 😀

[Wyebird]

Isn’t it good when you feel an improvement in your symptoms. Obviously impacted by your meds. I do hope it continues for you.

[Mackydee123 in reply to Wyebird]

Hey Wyebird,

Yes it is great! Some positivity for a change! I have a spring in my step. Spoke tug nurse today, staying on 45mcg, which I’m happy about as it seems to be doing the trick with minimal side effects.

Had the post jab buzz today but settled now.

Hope you are well

[Meatloaf9]

Great news! Best to you always.

[EleanorPV]

Great news. Remember this is a journey of life. Go and enjoy it and don’t be too disappointed if any of your number have an occasional blip xx

[Mackydee123 in reply to EleanorPV]

Thanks Elenor. It’s so weird to think this is something that we will have to deal with for life! There’s days when it’s not there at all and yet weeks when it’s all in your face.

Thankfully these meds have started off in a good way, a bit of positivity goes a long way!

K

[ihavegotet]

I feel better for sure but still get headaches and some muscle soreness as a side effect of peg. Overall very happy. My hands and feet feel better but not 100 percent.

[Timjonze]

Great news Kerry especially with no side effects.

[mhos61]

Great results Kerry.

Hope it continues to go well for you.