I have recently been seeing a haematologist due to high haemoglobin, haemocrit and red blood counts. I went to the doctor last summer because I was very tired, achey struggling to concentrate etc and he flagged that my blood counts were very high and have been since the first blood tests I have recorded when I was 16 (now 25).
I've had the jak2 test and it was normal. My epo levels are also normal (despite having a third kidney) and my spleen and liver looked fine. My haematologist originally diagnosed polycythemia due to years of persistently high red blood counts but now is a bit put off that they can't find the cause.
I had my first venesection this week which really has helped my symptoms even though they were unable to get the full amount out because the blood kept clotting.
I'm just feeling a bit lost with it all at the moment and any thoughts would be very welcome