Hi Folks , I know it's been a while since I posted an update for those of you who have been following my progress both before and after my SCT in Sept 2015, (was it really so long ago?). Things continue to creep on by degrees in my on-going battle with my GVHD buddy. But I can tell you of a couple of very recent milestones.
The first is that last wednesday I had one of my steroid induced cataracts removed and the immediate result is very promising as I can see the world in all its glory with vibrant colour which I had forgotten existed in my dull grey world of many months. What I can tell you is that if you need cataract surgery there is nothing to worry about though I admit had I not gone through the numerous procedures I have I would likely of been bricking it. I have to wear my patch for a month and put drops in regularly.
The other milestone is that I have stopped my Extracorporeal Photopheresis - ECP. I have been on it for 2 years and it's effectiveness has reached a natural end. So next month I will likely have my Tessio Line surgically removed. I will miss it because it's been part of me since 2015.
Apart from that I'm gradually gaining weight and strength but have my limitations. "It's life Jim but not as we know it" . . BUT IT'S LIFE 😀.
THANK YOU FOR ALL YOUR SUPPORT , Be assured it has made a real difference.