I have been following this forum since I was diagnosed with ET calr in 2015 at the age of 41 but this is my first post, so here goes!
At diagnosis my platelet count hovered around the 600's but since then they have fluctuated between the 800 and 900's. I got the results of my last blood tests the other day and they have jumped up to 994, which has set all sorts of alarms bells ringing. I am an extremely anxious person. I know that with the calr mutation platelets tend to be higher but is it normal for platelet counts to fluctuate like this? Have asked my Consultant about this in the past but never got a straight forward answer! Hoping you lovely people can help.