Hi all -- I have ET (about 2 years since diagnosis) and up to a month ago, the most challenging symptom I've had to deal with is the dreaded fatigue. But all of a sudden in the last month, I have developed very severe shortness of breath. It is constant and nothing relieves it, no matter how much I rest, exercise, drink water -- do all the things that have helped with fatigue. It's effectively sidelined me -- after fifteen minutes of even the mildest exertion, I can barely breathe and have to stop and rest. I'm working with my doctor to make sure that something else isn't going on, but so far all the tests we've done (heart, lungs) are clear.
In the meantime, I have two questions I'm hoping you all can help me with: 1) while I know that others have mentioned breathlessness as a symptom, has anyone else encountered it so suddenly and with such severe impact? 2) If this is related to ET, can anyone explain the physiology of what might be going on?
Thanks so much! Happy Sunday to you all!