Hi everyone. I have ET jak -ve, diagnosed about 3 years ago. I just take aspirin. I also have neurofibromatosis type 1, with many serious complications.
I know my platelets have fallen slightly to 1100 from 1500, but I have been noticing some changes. I'm becoming increasingly breathless, and my heart skips beats to the point I feel dizzy. I also have burning toes, which I had at the beginning, but after taking the aspirin, that stopped. To have it come back is a concern. I'm also having trouble swallowing, which to be fair COULD be due to my nf, as I have a lump in my neck. I'll let you know how I get on tomorrow...