First BMB tomorrow :) *update now done* - MPN Voice

MPN Voice

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First BMB tomorrow :) *update now done*

EmeraldA profile image
14 Replies

Hi Everyone, I'm getting my first BMB tomorrow. Think I'm up to speed on what to expect from reading previous posts here. I'm a bit nervous about the procedure itself but I suppose if I'm honest I'm more nervous about the results I'll get. I'm ET Jak2+ last platelet count 544. Also did anyone take co codomol before the procedure? Thanks :) **UPDATE** thanks again to everyone being so supportive on here. Honesty, you dont know how much it helps. I am also not sure what I would do without it!! Well I had my bmb yesterday and it was not as bad as I thought it would be. The doctor doing it was great. A bit of pain but pain you could deal with and some very strange sensations like someone was blowing bubbles inside my bone. Glad that bit is done. Now just have to wait for the results. My platelets are steady at 587 (up from 544 last time). I also got my Allelle Burden result which is currently 20%. I asked if this was high and was told it was in keeping with the lower end of ET Jak2+. I went home yesterday and rewarded myself with bed, buns and Netflix :).

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EmeraldA profile image
EmeraldA
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14 Replies
Dovme profile image
Dovme

Good luck your be fine

I didn’t take anything before the procedure

Alexbits profile image
Alexbits

You'll be fine and given your low platelet count the bmb results should not be anything major. The procedure itself is nothing to fear. Good luck.

IrishSarah profile image
IrishSarah

It’s finally here for you Brona!! You’ll be so thrilled when it’s over and done with and you get great results back 😉

Best of luck tomorrow, will be thinking of you 💚

lunasurf profile image
lunasurf

Try not to worry too much, I found the anticipation was so much worse than the actual procedure. It was nowhere near as bad as I thought it would be.

You can do it! ❤️

EmeraldA profile image
EmeraldA in reply to lunasurf

The anticipation is much worse! That was so true yesterday!

lunasurf profile image
lunasurf in reply to EmeraldA

That’s so great to hear! Well done you🙌🏼

EmeraldA profile image
EmeraldA in reply to lunasurf

Thanks Luna!!

EmeraldA profile image
EmeraldA

Thanks for your very supportive comments. 💚 Just what I needed to hear haha! I'll let you know how I found it. Bx

Pkm52 profile image
Pkm52

Mine was a breeze. Dr. numbed the skin and always stings a bit. I am a NP and I always told my patients that stubbing your toe usually hurts more than most out patient procedures. It’s the absolute truth. The information is vital to knowing how to best care for you. I will send you power thoughts!

IrishHiker profile image
IrishHiker

I have just had one to date. The only thing that I felt was when they numbed the area it felt like a mosquito bite, pressure when taking the sample followed by a quick “electric” sensation when it was aspirated. That last sensation is because of the nerves in the bone/periosteum or so my doc told me. It was not bad at all and they explained everything to me beforehand and during while it was being done. Good luck to you!

Jenny_F profile image
Jenny_F

The first one I had they gave me a sedative and that didnt go so well but the most recent one was easy and not v painful at all so I wouldn't worry.

Mazcd profile image
MazcdPartnerMPNVoice

HI Emerald, good luck, hope it all goes ok, Maz x x x

Bears23 profile image
Bears23

good luck, dont sweat it. Ive had two, they are not too bad. A little bit of pressure and over quickly. The entire procedure/process took me five minutes. My last on was done during my regular appointment, in the same room.

Meatloaf9 profile image
Meatloaf9

Good luck to you, it won't be bad. I was given 50 mg of benadryl at the hospital about 20 minutes before the procedure, nothing else. It was a breeze.

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