I'm Alex, 34 y/o and it looks like I have an ET, with platelets 600-700, JAK2+ (17% burden), other blood parameters seem to be in the normal range.
I also suffer from facial pain, tingling burning sensation in my cheeks, forehead, back of the head and also twiching (fasciculations) in my legs (calves). Electrocardiography showed some damage to nerves....Have an appointment for MRI....
I was on aspirin, now on Plavix. This fixed only migraines and scotomas which I had previously.
Does anybody had the experience with leg twitches/fasciculations/neuropathy?