I have had several "episodes" of sudden, overwhelming tiredness followed by slurring speech. I have often had to excuse my slow, deliberate talking because I thought people might think I was drunk when, in fact I am a teatotaller.
Last Friday I was sitting at the table paying my bills when I had a really intense rush in my head and a feeling I was going to pass out. This was followed by the slurring speech again. I know now that I should have called my GP straightaway but my speech had always gone back to normal the next day.
By Monday I was still struggling so I phoned my GP who called me straight in and, when hearing my difficulty with speech, sent me straight to hospital for a CT scan.
The scan didn't show any abnormality but they are sending me to the TIA clinic this afternoon for a MRA. I am still struggling with my words and it takes every amount of effort I can muster to get the right word out. I should also add that I have had difficulty with memory, in particular, finding the right word, for quite a few months now.
I always put it down to the PV and Hydroxy but I did start to wonder about mini strokes as these episodes became more frequent. The doctor at the hospital really gave me a good ticking off for not going to A & E on Friday. I am almost phobic of doctors and hospitals now because I have had so much happening with my health that i feel I just can't handle anything else.
Just keep your fingers crossed for me for this afternoon please, as I know you will xx
Written by
jillydabrat
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3 years now Kelly, it is more likely the warfarin I have been taking for over 13 years as I had 3 DVT's. If you have PV you are more prone to strokes, or should I say there is a slighter higher risk than normal.
So sorry you have been havingvsuch an awful and i'm sure, worrying time . Fingers and toes crosssd that all is well for you this afternoon. I also hope that you are soon feeling a whole lot better Thank goodness you are getting the right investigations and at least if anything untoward is found they will start appropriate treatment, management and monitoring.
Hi Jilly, Only wish we could alleviate all your problems, you have been through so much...and been incredibly brave and patient about it all. Hope and pray now you can have excellent help and advice and support from the medics to get you and keep you as well as you can possibly be. Know you have masses of support from this brilliant Forum, with everyone really caring about you. Love and more hugs, Tinkerbell.
Every good wish to you jilly. I'm fairly new here but have read some of your old posts and you certainly have had some issues to deal with yet been supportive to others on here . Everything crossed for you Jilly .xx
Good news. Saw an amazingly nice Neurologist and had an MRI which didn't show any bleed, so no stroke. We are now looking at my diet because following a gastric bypass you need a minimum of 75 grams of protein (higher than the average 45 grams for a woman because only 50% is absorbed). I have had lots of problems eating after the bypass and could not tolerate much meat and virtually no vegetables. We have added up what protein I am having a day (I live on ryvita and sliced ham) and found I am only getting, on average, 10 grams of protein a day. Protein feeds the brain so I may be experiencing "brain fog", a common problem from protein deficiency. I also cannot tolerate potatoes, white bread, pasta or rice or else my blood sugar goes rocket high and I have a whole boatload of other symptoms. I have an appointment with the Endrochronologist in April to see why I am spiking on carbs. For now I have to have a high protein diet. Bought some Whey Protein drinks to try and boost my system. So, thankful that no stroke but I am still a mystery to figure out. Thank you everyone for the lovely posts xxxxxxxx
Hi Jilly . Just read your original post.......then saw this one. Well I am so glad your MRI scan was clear. You have had an awful time. Good that the problem has been identified so can now be addressed.
I am so sorry to hear of your other problems, I had no idea you were dealing with so much. You are always there for other people with help and advice. So thank you .
I hope now you can start to feel better very soon.
Just read your post & then so relieved to see your update! So glad to hear it’s nothing too serious for you. Take care & enjoy munching on the protein!
Hi jilly, I too have just read both posts,so pleased for you that it's not a stroke. Isn't it amazing how things can be affected by what we have or not have in our diet!. Carole x
Sorry to read about your suspected stroke and so glad it did not happen. It must have been so worrying for you. I am really glad that it looks like some of your problems can be helped by diet although it seems it will be quite a task tailoring food to your needs. You have had such a shock and I hope that you can now relax a bit knowing that you will be having the right follow up appointments.
Hi Jilly, hope all is OK at your scan, I too was experiencing those symptoms it was only when I had a MRI that they discovered that I had had a stroke, I asked if it was a TIA and they said no it was a stroke, so always best to get these things checked ASAP, Wish you luck, let us know how you get on xx
Hi guys, nearly a week later and I am still struggling with my speech. It's nowhere near as bad as when it first started but people are looking at me perplexed when I struggle. It's bizarre. Extra protein has done nothing to help yet but I am carrying on with it.
Your scan shows that you haven't had a stroke, but you still need to be wary. As I understand it a tia doesn't show on scans. Your slurred speech is worrying.
I was under the impression that an MRI scan would see a TIA. I am still suffering with slurred speech to the extent I broke down crying with frustration at not being able to get my words out when I saw my Endrochronologist yesterday. I won't talk on the phone now because of my slurring and not being able to find the words.
no, none at all. I finally phoned my GP back today and he said he could hear something was still wrong. He has asked me to wait for the discharge letter from the clinic, which he is going to chase today, then he will look at referring me to whoever he sees fit. I do have an amazing GP
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Possibly facing ET diagnosis
Hospital blood test and gp blood test
