Mutated blood

[Lainy1]

Saw my consultant today and blood is artificially still within normal range wopeeee xx 🤗😊🤗😊🤗

[Superwoman]

That is great news. 😀

[Aime]

That’s great news.xx kindest regards Aime xx😺

[Poppy6060 in reply to Aime]

Hi what good new keep smiling best wishes Poppy

[Nickthedevil]

Excellent news!! 😄

[champ30]

That's brilliant.Long may it continue!X

Regards Lyn.

[Lainy1]

Thanks everyone for your kind words. Feel like ive won the lottery xx

[Coradelphine]

Sorry to be thick but what do you mean by artificially still?

Sue

[Lainy1 in reply to Coradelphine]

By drugs (hydroxycarbomide) 😁

[Coradelphine]

Of course I should have realised! I’m so pleased for you you’re right it is like winning the lottery! Mine has been kep under control with hydroxy and latterly with anegralide, I was diagnosed 14 years ago and it’s wonderful hearing ‘stable’ when I have my blood checks so I really do know what it feels like - celebrated and keep taking the tablets!!

Sue xx

[Lainy1 in reply to Coradelphine]

Thanks sue, it's an easy mistake to make.. wow 14 yrs living with it and having regular bloods is amazing.. I was diagnosed 9 months ago and only been taking HU for 7 months now. Why have you laterly been taking anagrelide? Still learning 🤗💖😁🤔💖

[Coradelphine]

ET hardly affects your life span as long as you take the tablets!!

I was on hydro but my playlets were taking a lot of controlling so anagrelide was added then the hydroxy was dropped to see if it would control things on its own - I’ve been stable ever since.

I go for blood tests every 12 weeks now, when I was first diagnosed I was going every 2weeks!

So don’t worry about it keep taking the tablets and get on with your life

Sue x💐👍