Is it common that it takes a while to diagnose polycythemia related health issues ?
Polycythemia : Is it common that it takes a while... - MPN Voice
Polycythemia
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hi - depends what you call a while! It took around 3 weeks for the blood test from my gp to suggest that I had PV, then further tests by the hospital, so around 6 weeks in all for me.
Louise
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What issues are you having that you feel are related to your PV? Maz
Morning,
I'm having headaches and dizziness. Sometimes blurred vision but not often. Itching but medicated from that. Small nosebleeds but often. Ridiculous fatigue . Lost interest in eating , I've lost three stone in two months. I also have gout. My haemoglobin has been high for for the last 1omths. I'm just waiting for a scan but the chemicals that they use have to be sourced from abroad do got to wait. Thank you
I went to 6 or 7 doctors before I was sent to an oncologist that diagnosed mine. To make sure he had to do a bone marrow biopsy. Good luck, hope you find out soon. Ann16
Did you see several haematologists before seeing oncologist?
No I only saw one to be diagnosed. The other doctors didn’t have a clue what was wrong with me so I asked to see a hematologist and was finally sent to one. He saw from my blood work but made sure it was PV with the bone marrow biopsy.
hi i was diagnosed pretty quick my doctor sent me to see the oncologist he sent me next day to have a special blood test three days later I got result had to start venuscation straight away other test followed I was diagnosed with polycythanemia ruby Vera primary james
I would search for a doctor who specializes in MPNs. My general practitioner suspected PV, sent me to an oncologist, who confirmed it with a bone marrow biopsy, and I began treatment all within 2 weeks. The symptoms you mentioned definitely fit those of an MPN. Wishing you well.