Hey, I would love to hear from any PV patients who have had success with interferon?
I have had PV for over 8 years nearly 9 and I was able to fight the fatigue and live a normal life, however, my life seems to be getting smaller and now even exercise has me feeling awful for days so I am avoiding it. Ever since an op in June I have struggled. Before that I was still running and racing 10ks my last one in March (not super fast but sub 60 mins) Now my iron is low, my ferritin is low, so now discussing drug therapy but I don't want to rush into anything but as we can't have iron as will increase RBC I feel I may have no other options.
Thanks