Hi, my 24 year old daughter has been recently diagnosed with E.T. She is reluctant to join herself, feels very isolated, that there is no-one can identify with her.
Similarly, I feel finding support as a parent unlikely.
We attended the conference in London this weekend and I found myself to be younger than most of the sufferers.
Is there anyone else under 50 who is a patient's parent? Would love to hear from you.