Drinking water

[Eoin]

I know this is a small point but drinking 2-3litres of water a day is quite a lot maybe 12-15 glasses of water which I find a bit of a chore but I have found that drinking from a 500ml bottle much much easier and you know exactly how much you are taking in...try it😃

[Nicky57]

I do the same and I also have a 500ml mug for tea. The other thing I find very useful is the 'Hydro' app which I have on my phone. You can set it to remind you to drink, say, every hour, it records your intake and tells you when you have reached your goal.

Nicky

[bossybo in reply to Nicky57]

I used to count every drop(almost!) but I have a pint glass and I usually go on the colour of my urine to know whether I am having enough.Very pale straw colour and I know I am fine. When I was first diagnosed I was told "No coffee, no alcohol and only 2 cups of tea a day" I do not mind about the alcohol and I am not a coffeeholic but i was a bit fed up about the tea! However ,as you can drink as much milk as you like I have a pint of milk and hot water first thing in the morning-I have got used to it now!and half a pint of tea at tea time. Bossy bo

[Margo18]

Hi. I have ET and am on hydra 1 x 500 Monday to Friday and 2 x 500 at the weekend. I am unable to tolerate either aspirin or plavix and have low iron levels. My dr has advised 3 litres of water daily. I take 2 pints in the morning and 1 litre bottle to work. Then another 2 pints at home during the evening. I can manage this but am up several times at night 😞. I do get fed up with all the water What do others do ? Also does anyone else have low iron not sure what the cause of this is.

Thanks for reading

Margo

[Johnsb in reply to Margo18]

I'm not an expert but in my case it is the Hydroxya Urea and how it works by slowing the blood cell production. Low Iron and ferritin levels are very common. If you try to increase your iron levels your hgb levels go up which is what the hydra is trying to lower. Afraid your stuck with low iron levels. But, maybe someone else on here has a better solution.

[Margo18 in reply to Johnsb]

Hi. The whole thing is such a balancing act. If something goes down another goes up. Anyway we are still here.

Margo

[tracey1003]

I will definitely try it

[bossybo]

I was very low in iron and was put on a very low dose for several months. The inevitable constipation was difficult especially when radiotherapy for an unrelated condition from ET made it difficult to eat,So Iwas allowed to stop-,all is well internally now and I can eat what I want and my iron levels have gone up without any extra iron. However-the dose I had was very low as the doctor explained that there were risks from taking iron with our condition.I love liver so try and have it once a week and red meat at least twice. I hope this helps.

Bossybo

[Jellybean129]

I used to be very guilty of not drinking enough water, basically because I wouldn’t think about it, unless there was a glass of water nearby. I now fill three bottles (1 litre bottles) with filtered water and put them in the fridge in the morning. I also have one of those infuser bottles which is great - just chuck in whatever fruit you like and it flavours the water. I’m into lemon big time at the moment. I can monitor how much water I drink and have got into the habit of taking one of my chilled bottles wherever I go (including on the lawn tractor!) to the point where I’m getting through the 3 litres quite easily each day. Feel like a barrage balloon but hey - at least I’m well watered!

Gill

[TrickyDicky]

Hi. I wasn't the best at monitoring my water intake. Really started to take more notice when my kidney function results were a bit out of range. I don't religiously monitor how much but am much more conscious of it than I used to be. Sometimes I have a water bottle at work, other times I have a pint glass. I always start the day with a pint of water as well. I don't drink alcohol during the week but like to have a couple at the weekend. I tend to stick to 4 cups of tea or coffee a day. Like bossybo I tend to judge by the colour of my wee. I like the idea of the hydro app that Nicky57 suggested.