Change of season cause problems?

[Jellybean129]

Hi all

I just wanted to ask if any of you feel worse now that Autumn and the associated colder weather affects your symptoms?

My joint pains have got a lot worse recently and the fatigue is steadily increasing, together with breathlessness. And as for the brain fog...... I do wonder if I still have a brain some days!

I haven’t changed my routine at all - it is basically the same every day as I have animals to deal with (horse, 1 elderly sheep, three dogs, cat, guinea pig.....!) so I know it’s not lack of exercise (oh for a duvet day!).

I suppose it may be worry/stress related - I have my first haemo appointment on 6th November and have had a letter from the referring consultant asking me to go on aspirin immediately.

Thanks all

Gill x

[Ebot]

Yes! As much as excessive heat can be challenging I HATE the cold! Really not looking forward to winter dog walking and cold, numb hands and feet. But more than that I think the grey days are a killer and the fact that the sun, when it shines, has deserted my back garden. And as for the nights closing in. Short days don’t really work for me! I need those long hours of daylight to compensate for the times when fatigue hits and I don’t get stuff done when I intend to. Roll on Spring! Xx

[Jellybean129 in reply to Ebot]

I so agree with you. Roll on spring!

[mhos61]

Hi jellybean 129,

I do suffer from joint pain at times. I think mine is probably wear and tear/age related. My knees and shoulders grate. It doesn't follow any particular pattern in regards to seasons either.

Leading up to my diagnosis of ET the joint pain definitely exacerbated, and I was developing joint pain in my elbow which I had never had before. I just put it down to aging. Although I stilll experience joint pain it has reverted back to what it was pre exacerbation period. I believe the hydrea has helped with this.

On another note, I have always loved the winter and the dark nights. I think I am probably in the minority there?

Mary x

[Jellybean129 in reply to mhos61]

Hi Mary

Thanks for your reply. I too have elbow pain which is an absolute bind. I can’t stand the long nights - I love the sun and warmth. Not sure why I live in the UK as we don’t get much of either!

I’m sure aging has something to do with it and maybe I’m getting payback for being so active when I was younger.

Gill x

[Bridie123]

Hi Gill, yes got all those things. Feel like some thing is slowly sucking the life out of me. Saw hematologist Friday, she thinks its hormones! Do they want us to top ourselves! All I can say is, one day at a time, some times, one hour. Oh if only it would go away! 😭😔😩

Regards Carole X

[Jellybean129 in reply to Bridie123]

Oh Carole, you took the words out of my mouth - I would love to put it all in a big box and dump it on the bonfire!

Why do they always blame the hormones!!!!

Gill x

[lizzziep]

My joints get worse as the weather changes,

I blame old age and poverty! 😄 (And the ET and drugs and everything else, the government and even Brexit) 😄😄😂

[Jellybean129 in reply to lizzziep]

Let’s hope with Brexit we can raise the anchor and sail to warmer climes! And leave the ET, government, drugs, old age and poverty behind, while we search for our pink fluffy cloud!

Gill x

[linds]

Oh gosh, I am so relieved when the summer heat has passed - really and truly. My favourite days are like today, a light breeze, puffy clouds and sunshine but really cool. I just do nothing but gasp in the heat and now my energy levels are so much higher. I don't have aching joints though and at 70 I am grateful for that. I love the rain.....don't shout all at once! I love walking in the rain and jump in puddles still although when no one is watching because it probably does look a little mad for an ancient to be doing that. I love warm sweaters until I get hot and itch, when I rip off the clothes and grab the fan! The only weather in winter I really dislike are those grey days when nothing moves in the sky and you feel as if you want to get a feather duster and wipe them away. I am really sorry for all of you with sore joints and hope they are not too bad but here at least is one person happy - me. At least on those fatigue days I can curl up in a ball with a rug and laze not feeling I should be gardening.

Best wishes everyone

Linda x

[Jellybean129 in reply to linds]

Oh Linda you make me laugh! I must admit a fresh windy day in autumn is invigorating, but perhaps not enough to make me rip off my itchy jumper! Puddle jumping does have its merits but out here in the sticks our puddles seem to end up as liquid mud and I’m notorious for falling over as soon as the going gets slippy! At least I have my ‘Michelin Man’ outfit (very unflattering waterproofs) to keep me from too much of a soaking!

You are a marvellous, positive ‘ancient’ and your words are fresh air to me. Keep puddle jumping - it’ll make everyone wonder what else you get up to!

Thank you for brightening my day

Gill x

[linds in reply to Jellybean129]

Gill, thank you for your appreciation. Talking about skies, have you noticed the very strange colour yesterday and today. I am in Surrey by the Thames and it's wierd. No red sun today though. Best wishes x

[Jellybean129 in reply to linds]

I certainly did! I’m in West Norfolk and I don’t think our skies were as red as those further south but they had a very eerie green/yellow/red tinge. It felt like sundown at half past three! Our dogs were very quiet until the skies began to clear later.

All the best xx