We are unique !! We have each other here though..I feel like we are not alone here.We are a family of sorts, sisters and brothers here helping each other throughout all of our ups and downs that we endure and experience!!!Everyone of us deserve a pat on the back and realize how lucky we do have each other..Love all,and God bless you all..Angela...(post ET.7yr.s.Myelofibrosis3yr.s
Out fight Together..: We are unique !! We have... - MPN Voice
Out fight Together..
Hi Angela, I totally agree with all you have said and also we are blessed to have found one another. The bond of having a rare disease and coping with it is so strong, as is the desire to help others in the same situation. The day I found this forum a weight was lifted off my shoulders, knowing I wasn't alone with a disease that even the medics had little understanding of and knowing my family (who were going through it with me) had access to trustworthy information and support should they need it.
Kindest regards and E hugs to ALL Aime xx😺😺
What a lovely post ! I feel exactly the same - I'm less than a year diagnosed with PV but find our forum so supportive and inspirational . It is so comforting to know that you're not alone and there are so many lovely people out there ready to help, support and offer invaluable advice .
MPN Voice Rocks !!!
Love Di
xxxx
How very true Angela, , our Forum / community helps us all in some way. I know the good folk on here helped me through some VERY challenging times in the past couple of years and I am eternally grateful to them even though we have never met in person. I hope it continues to thrive at least until these horrible conditions are consigned to history.
Chris
what a lovely post xx. I know this forum is to discuss all our issues (and there are so many) with our MPN's but the other posts about happy events in our lives does help brighten our days (especially when it's about puppies lol). I love all my MPN family and can't wait until the forum at Newcastle in October so I can put faces to names xx