Thank you all so much for your replies. I have never felt so scared and alone. I have so much to be thankful for but right now cannot appreciate any of it. I was an RN and Agoraphobia Therapist. Why can I not apply the love, support and healing steps that I gave patients for so many years to myself. I am so lost, crying constantly. This is not me. Your loving replies mean so much to me. I cannot find the words to tell you all how much. How do I get a Buddy? Perhaps that will help.
I am so sorry to learn of all your troubles. They all appear to be far worse than what I am going through yet you all are able to handle them and get through the day. God bless you all for being here for me. I promise to try to not give up.
Love, hugs and prayers. ❤👍🙏
Kinsalelady
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Kinsalelady
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Hi, no honestly I wasn't handling my troubles back in 2012 so I know how you are feeling. Please seek help from your GP. Maz our editor will be able to contact you privately and arrange a buddy for you.
Please don't give up, you can overcome this - I'm not a strong person and I managed! E hugs and love from Aime xx😺😺
You will come out the other side of this rest assured. Since my BM Transplant I have been in a number of very dark scary places. Admittedly I have had the support of my good lady wife, sister and many folk on our Forum. But I got a real lift from the latter as we are in reality strangers thrown together here by a common bond. The love and support that shines through from them is phenomenal.
Please try to keep a positive outlook which will help you forward.
Please don't think you are alone. We have all had our dark times and still do sometimes. We are all here to help each other and you will get through this. Sometimes we have to accept that we can't always be as strong as we think we should be and forgive ourselves for that. I hope a buddy will help you.
We all have times, especially in the dark of the night, when all is doom and gloom. Of course in the light of day instead of contacting the doctor or a friend and discussing our fears we decide all we need is a stiff upper lip and bottle it all up. We should be more open about our worries. A trouble shared is a trouble halved! I hope all goes well for you 🍀🍀👍👍❤️❤️ X
Give yourself time! It's really tough to wonder if you are the same person you thought you were. Does your clinic or hospital offer counseling for people with serious illnesses? I know people who have found that very practical and helpful, and it's somehow easier to take when it doesn't come from close friends or family.
hello Kinsalelady, I am so sorry to hear that you are experiencing these horrible feelings and fears, it is not a nice thing to be going through, and I can see from the lovely replies you have had that a lot of us go through similar things, and at times it is ok to say, 'I can't cope alone any more', I am sure that having a buddy will help you enormously, if you could email me at maz.cd@mpnvoice.org.uk I can send you a request form. Best wishes Maz x x
I am a RN myself. We know so much, and yet so little about being a patient! The situation is turned completely around. of course, we must allow ourselves to react! To be scared! Now, it's time to use on your self what you have been practising on your patients❤
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Hydroxycarbamide and Butec (buprenorphine) pain patch
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Thank you MPN Voice! Where are you from?
Just diagnosed with Essential Thrombocythemia
