Near fainting

[Kinsalelady]

I forgot to mention near fainting spells, 2, to my last post. Does anyone experience this. Also very scary. This is why an MRI was ordered. All normal. Cardiology workup is next.

I feel like I just cannot fight this any more. Too many terrifying symptoms.

Love and Hugs. Kinsalelady.

[fannetastic]

I am really sorry you feel this way, but fight it, you can and you will.

Do you have a MPN buddy ? If not, ask Maz to help you there. Things can seem very bleak at times it CAN be very easy to think I can't take any more, how do I get through this, but please, please take heart that as a group, we are here for you to rant, vent your feelings and also your anger. Last year I was in a similar place. Hydroxy , heart attack, diagnosis of diabetes, venousections, father with a massive stroke and other things that normally I would have dealt with calmly but went into meltdown. I told myself that I am still alive and in the bigger picture, things could be worse although some days it didn't feel like it. Does that make sense.

.What I am saying really is tomorrow is another day.

Huggles and love.

Anne. X

[Aime]

So sorry you have got more symptoms. I go through spells of being light headed and a swingy feeling, not sure if that's the same. My GP did cheeks and thinks it is variations in blood pressure that I am sensitive to.

You can fight this - as Anne has said in her reply she's been through it and out the other side. Her suggestion of a buddy is an excellent and do get all medical checks done so that you are reassured on these points.

Like Anne, I had a meltdown in 2012, newly diagnosed with PV after loads of tests, feeling crap, waiting for results and trying to cope with elderly parents, who had dementia and other illnesses. My daughter and husband dragged me to my GP who listened as I totally broke down and admitted I was not coping. He put me on to sertraline, an anti anxiety med and once my body got used to it , I have never looked back and I'm still on it. For me it helps me cope with things in an objective and reasoning manner which was non existent before. Please seek advice from your GP, I'm glad I was dragged to mine kicking and screaming!!

Loads of hugs

Aime xxxx😺😺

[Inca]

I agree with all Anne nd Aime say...Harlie we all experience terrible panics. Don't give up ,I felt like it when my skin cancer was diagnosed,you know your face is your whole 'self'and I wanted to just fade away.Two months on,Scars healing ,I look like me again.....if nothing shows on scans,it is probably your own imagined thing,, we all have them,a mild tranquiliser works wonders ....such a rotten disease that does not have many medical people who know enough to guide us .Keep strong...warm wishes ,hugs,we are all here to help ,try not to worry,Sally xx

[beetle]

Yes, I get these feelings that I have to sit down or I might fall down! It is embarrassing as it seems to happen in supermarket queues, I guess it might somehow be related to BP but mine is almost always in normal range and I can't whip out the machine and take it in the supermarket😂. My haematologist has suggested a walking stick that converts to a seat but I'm not sure about using that either. I will have think seriously about it if the situation persists though

I really hope you manage to stay strong and remember that this site is remarkable in how supportive everyone is. I have never seen any hint of sarcasm or even downright rudeness that occurs on some other sites so, please, never feel that you cannot come here for support. We are all here for each other

Very best wishes

Jan

[Stephen399b]

I have ET and sytemic mastocitosis - which is too many of the mast cells normally associated with histamines. I had a fainting episode which no-one could explain. But it seems to be a rush of histamines caused my blood pressure to drop to the floor - followed by me! Tests show my sittin/standing blood pressure does drop quite a bit.

Have you had a BMB? Ask them to check for mastocitosis?

Stephen

[katiewalsh]

I think you would really benefit from learning some relaxation techniques. There's a lot of info online. Stress increases not just blood pressure but many, many other things too. It also increases how much pain we have. My husband has neuropathy. When he's stressed the pain is intense but if he calms down, he uses music or breathing exercises, the intensity of the pain drops drastically. It's also extremely effective at reducing anxiety and helps with depression. Practice it a few minutes a few times daily. The cumulative effects are even better. Last, given the stress you're under, maybe you should ask your doctor for a prescription for anxiety medication. I'm generally anxious unless I meditate so I take it and it helps so much. Online you can sign up for free weekly email newsletters from mindful.org. Also look at University of Wisconsin Center for Mindfulness Research. They've had the Dali Lama and a number of his monks come for neuroscientific studies. What all the experts say is that it's OUR REACTION TO AN EVENT that creates our stress, not the event. All they mean is that we can learn through many techniques, to stay calm when stress provoking events are occurring. If you want to private message me yr email address, I'll forward you the next email I receive from the mindfulness groups. Hang in there. And remember we're all behind you. Katie

[Kinsalelady]

Thank you so much Katie. I was a Panic Disorder/Agoraphobia Therapist. I must learn to practice what I preach. I definitely will do meditation and I look forward to your email re the mindfulness group. I will google mindful.org. I must change my thinking to a more positive place. Thank you again. Hugs, Harlie

[fee13]

I have ET JAK2 + and have been suffering frequent dizzy spells but have lessened since taking aspirin 100mg. I also get the "swingy" feeling that Aime has mentioned, especially when driving around round-a-bouts and over bumps.

I do have neck problems which i have put this feeling down to but perhaps it is the MPN or combination of both.