Hugs and love to all. I read all your posts but I rarely write anything as I do not want to be a "downer". I am here today because I am terrified. Has anyone experienced something going on in the brain? It is difficult to explain what it feels like as I just do not have the words. I do not know whether to call it a brain spasm, brain jolt??? Had an MRI of the brain last week, all normal. Woke me at 4:30 this morning from a deep sleep and scared me beyond belief. Some days I get minor brain twinges. Please let me know if anyone has experienced this along with PV. I pray not as it is so scary.
Seeing hematologist number 2 on Wednesday and have no rapport with him. My Internist is awesome but I can't seem to find a hematologist that pays attention to me and not his computer.
Please let me know if God forbid anyone has experienced this. Sending love and hugs and prayers to all.❤🙏