Cortisone Injections

[Sagiegirl]

Hi all, I'm looking for some advice.

I have bursitis in my hip, and my GP has recommended a corrisone injection as part of my treatment plan.

He has advised that I should speak to my hematologist before having the injection as it could cause bleeding and bruising.

I asked my hematologist about it today, and all I got was that the specialist clinic that was going to give me the injection should call prior to going it.

I'm now not sure if I should do this or not. All advise is welcome.

Has anyone had to have a cortisone injection and if so, were there any issues during or after the injection?

Thanks

[Pinktulips]

Hi! I had bursitis on my shoulder but as my platelets were over 700, I wasn’t allowed to have the injection unless my platelets were lower (cortisone increases platelets).

2 wks ago my platelets were in the 500’s so the haematologist told me I can go ahead and have the injection (had it last week).

Are your platelets very high?

[Sagiegirl in reply to Pinktulips]

Thanks for letting me know about your situation. I'll have to get into contact with my hematologist to find out my last count....I really don't understand why I can't get a straight answer from my hematologist of 'yes' or 'no'.

[Pinktulips in reply to Sagiegirl]

Sometimes you just need to be persistent. Just explain to the haematologist how much pain bursitis is causing to you and to help you out with a clear answer. Good luck!

[Sagiegirl in reply to Pinktulips]

Thank you

[Doxy46 in reply to Sagiegirl]

Your platelet count can change day to day. (I had a count around 580 on Monday. On Wednesday it was in the mid 600s. ) This might explain your doctor's reluctance to pre-approve the shot.

[Anag in reply to Doxy46]

my hemotologist told me that platelets can vary up to 100 from morning to evening. When they found my ET, my platelets were 819 but next morning 909. I tend to be a jumper. I know some Er patients who are always stable.

[Anag in reply to Sagiegirl]

It’s good to always know your platelet count and not have to call the doctor. Doctors have hundreds of patients. If we learn and are our own advocates, we anre empowered and knowing helps us have peace instead of insecurity.

There are many treatments for per situs other than injections. Anti-inflammatories that are natural like Tumerick and curcumin can work wonders. Also acupuncture. Someone said that Cortizone raises platelets! I didn’t know that! If you can, try to find a good functional doctor or homeo path to give you natural pain and inflammatory therapy. I always try to stay away from chemical medicines to not further burden my body.

wish you well. Anag

[Oscarsboy in reply to Anag]

I also am due to have cortizone injections in my shoulders as I have subacromial impingement as well as bursitis and tendinopathy in both shoulders (scans just revealed this) I cannot have anti inflammatories due to being on aspirin, have tried tumeric etc, to no avail and a series of acupuncture which sadly did not help at all. Other than lighten my bank balance ! Not sure what options I have left. I am now trying Hemp capsules to see if it unburdens the pain as it is excrutiating, disturbs sleep and agony to turn over in bed. If there is a simpler safer remedy, I would love to hear about it from anyone .

[Anag in reply to Oscarsboy]

my husband was dealing with a shoulder impingement this year and he is a violinist. Truly, a disaster for a musician. There is a treatment called shock wave therapy that is painful but really helped. You have to make sure to find a Doctor Who uses very modern up-to-date equipment. There is a new system that hardly hurts at all. It’s just uncomfortable. The doctor numbs the area somehow first. He does his exercises every day to keep his shoulder. Mobile is 61.

hemp, and CBD are not all the same. Make sure you get a CBD that is very pure best in an oil or tincture. I believe the oil have to be put under the tongue and it is absorb quickly into the bloodstream. There is a lot of junk being sold out there. Please try to find a very reputable company that guarantees its products purity

[Oscarsboy in reply to Anag]

Thank you very much for your response and information. I will look into that therapy. My son orders the oil capsules and thankfully been very thorough in his research and buys from a very reputable company. It's very kind of you to offer this option to look at.

[Jimbosan in reply to Sagiegirl]

MPNs can be very heterogeneous or different for each person. Yes and no answers are hard to come by. Getting specifics from our doctors can feel like pulling teeth as well so either way it requires more work on our part. You are asking a good question so you are thinking about it better than some of us. I hope you have an MPN specialist as your hematologist. The difference is night and day in my opinion. In my experience oncologist and hematologist think they know MPNs well enough but often they don't know as much as we need. I was amazed at the difference. Good luck. I get injections every three months for lower back pain with no issues. I always run everything by my MPN specialist these days not only to prevent doing harm but to help him to understand what is going on with me in general. Helps him piece the puzzle.

[linphy]

Hi, I had cortisone injection in my knee last year and recently had another cortisone, no problems at all. I take hydroxycarbamide and clopidogrel

[hunter5582]

I have had minor cortisone injections without any problems. I have had major injection of hyaluronic acid into both knees with no problems. It made a major difference in my level of pain and greatly improved function. The injections allowed me to avoid surgery. The surgery would have been a far greater risk.

SInce the hematologist did not say to not move forward, this may simply be a suggestion for the hematologist to comsult with the orthopedist to inform that doc about your specific risks with having a MPN. That does not mean you cannot do it. it does mean that you need to engage in fully informed consent regarding the risks and benefits.

Note that I require all specialists to consult with my MPN Specialist prior to any significant procedure. This just a sensible precaution since most doctors have little idea of the implications of treating a patient with a MPN.

Wishing you all the best moving forward.

[Sagiegirl in reply to hunter5582]

Thank you for that. I'll reach out to both parties and go from there.

[hunter5582 in reply to Sagiegirl]

Good plan. It is the norm for us to need to be out own case managers and advocates. All the best with the procedure.

[Joetcalr]

Hiya, I’ve had bursitis in my shoulder, extremely painful. The GP was unable to diagnose it and just gave me painkillers, so I went privately.

I was recommended to wear a sling i.e. immobilise, ice it several times a day i.e. bag of frozen peas til the skin went pink, then put on a herbal gel with wintergreen and arnica.

I started recovery immediately, such a relief. Hope this helps. Jo

[Planting]

Hi

Had several in knee and latest one in my foot. No problems at all. I have ET JAK 2+.

[Exeter21]

I have had 2 for shoulder injury . I have ET . Haemotology were fine on it & did not create problems with bloods. Platelets were already raised due to my injury .

However the injections made no difference or improvement to my injury . Just took time to repair . Julia 👍

[Phil1955]

hi I’ve had cortisone in my knee’s several times and in both wrists quiet recently with no problems

[krotsida]

I had bursitis in my knee, injections made no difference for me too.

Rest your knee. Discontinue the activity that caused knee bursitis and avoid movements that worsen your pain.

[Oscarsboy]

Hi all, I am thankful this question and comments has been raised. I had a follow up with the Physio yesterday who told me to book in for steroid injections in both shoulders due to subacrominal impingement and bursists, which is extremely painful and agony at nightime, especially to turn over in bed! He had my notes (but obviously not familiar with Et Jak 2 and Hydroxy). I am now on waiting list for August. However I have my f to f review in about 10 days so am glad I now have this information to hand. Thankfully I have the results of the ultra sound scans to take with me so will now have to wait and see what is said. I hope they can go ahead as the pain is almost unbearable at times.

[Island-Lady]

I had a cortisone shot, no issues, last year and recently had a steroid shot in my low spine for extreme pain from a pinched nerve. The doctor for the steroid shot consulted my oncologist to make sure that I could be off of of baby aspirin for a week, since he didn’t want to risk bleeding. No problems with the steroid shot and I’m 95% pain free!!!

I have et jak2 pos. I was on hydroxyurea for the cortisone shot and am on Pegasys now, for the last year.

Best of luck!!!

[Innessant]

I had it because of Rheumatoid Arthritis. Also had high counts. It is a miracle cure...Do it. Cannot stay on them for ever but I had tablets which were truly life changing

[Oscarsboy]

As I had this conversation with my Haemo consultant yesterday, I just thought I would add the instructions I was given/advised in the hope it may help. My platelets thankfully were back down to uder 400 (I am on hydroxy) and I have an appointment soon for cortizone injections in both shoulders, but following the queries on here thought I would wait until after that appointment and report back. I was advised I could have them with no problem, all my bloods thankfully were good and correct. I have to stop the aspirin one week before I have them, and for one day following plus not take the hydroxy on the day of the injections. Then back to normal routine. The stopping of aspirin for that period is to avoid bleed/bruising. I hope this information may help .