London forum 2016 .. July 11 th : Hi all ,here I... - MPN Voice

MPN Voice

10,887 members15,204 posts

London forum 2016 .. July 11 th

Twinkly profile image
6 Replies

Hi all ,here I am. Twinkly , been cut off a while but I'm back again now ,

Wasn't it a good evening out in London at guys on Monday ,perry ( my son ) drove me up through the awful traffic ,I couldn't drive in London nowadays ,it's too hectic for me !

I enjoyed the haematology nurses talk .its good to know if you phone into your hospital unit ,she will call you back to put problems to rest .iv done just that ,to addenbrooks recently when I was vomiting at night ,good job I did ,my hiatus hernia had ruptured after 20 years of medicine .i needed urgent surgery ,my nurse put out the call to the gut clinic ..I was in hospital in 6 weeks .better now ! I took my medicine ruxulitnib all through my surgery with all good results ! So just proves it can be done .o,k,

Written by
Twinkly profile image
Twinkly
To view profiles and participate in discussions please or .
Read more about...
6 Replies
piggie50 profile image
piggie50

Fantastic photo of you and your boys Twinkly! Glad you're back online.

Judy xx

Inca profile image
Inca

Well,you are looking great Twinkly,so are those magnificent dogs,glad you are around again,how do you always look so happy?I just had a long trip to Paris to the. Bruce Springsteen concert,Fabulous....rocked until midnight,energy came from the band......should see me today,feet and ankles swollen ,totally exhausted,and joi de Vivre gone like a deflated balloon! Keep well and smiling.You are a tonic !

Twinkly profile image
Twinkly in reply toInca

The secret is to really rest between the big outings ,,eat small size snacks ,fruit and juice often . Feet up ,warm baths ,happy video ,s . Don't watch news .dont read papers ,really learn to relax .positive lifestyle ,keeps you strong and happy .yes I am a life lover !! Twinkly xx

Nickthedevil profile image
Nickthedevil

Oh Twinkly you are such an inspiration!! I try to follow your advice - don't always succeed but feel better for making the effort!!!! You and your boys look fab!!

Karen xxx

Bittebitt profile image
Bittebitt

Such lovely dogs! Black russians? I hav a 10 1/2years white/black newfie (english landseer) who is a great comfort right now. My biggest worry right now is if I shall have to put her to sleep if the haematologist decides that I shall have a sct (stem cell transplant). I will probably be diagnosed with cmml on thursday. Fortunately, I'm good at keeping my spirits up, and I feel quite well at the moment👍I have no children, but I have had dogs for more than 30 years. My newfie Kaylee is a great comfort❤️😊

Twinkly profile image
Twinkly

Please keep in touch with us ,let us help you through your tough times ahead ,,bittebitt

Surely some one will take your dog and foster while you go through your treatment .

Get in touch with a breed club ..they have some helpers .dont take a sad desision until all avenues have been checked out !! I'm sending my love to you ..try to eat and drink really healthy to build up your immune system before you go into a unit ..drink as much in every day as you are able to ,,bottled water .fresh juice !! I did just that and my surgery recently was a great success ...keep in touch. Twinkly. Xx💜

Not what you're looking for?

You may also like...

I Loved the MPN London Patients forum tonight x

So glad I signed up , it was great to put faces to names . I Watched it all with my Husband , it's...
Phelpsy profile image

Watch London Forum live online

I am excited more than 100 people with MPNs are registered to watch the July 24th MPN Voice London...
andrewschorr profile image

London Forum Follow Up

Didn’t get 100% success at last night’s London forum although to be fair my Where’s Wally shirt was...
MFBMT2011 profile image

Patient forum london

Hi all, I attended the patient forum in London on 16th. I would just like to thank everyone...
piggie50 profile image

All the Kind, Generous Folk of Our Wonderful Forum !

Kind Folk of Our Forum, Last night I replied to "Running on Empty" as have done many of you.. I...
pontygirl profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.