A bit of advice would be good. I was diagnosed Jack2 MPN unclassified in 2011. Up to now I have coped with the usual: itching, headaches, mainly fatigue, joint pain, ect, you all know the story. My last few appointments my blood levels have been rising to the point of they now think I should be on Hydroxy. I had my first venesection 4 weeks ago and am now on coated Asprin daily. They had a real problem getting blood for the venesection as my blood was very thick and sticky despite rehydrating like crazy for 3 days before. Firstly I have very cold icy feet to the point of them hurting then they can quickly turn very hot also painful. Is this normal ? I also feel sometimes I have an infection raging through my body, cold but flushed and sweaty, but no temp, and have to take to bed for 2 days, totally wiped out. Secondly I am struggling about this Hydroxy and whether there is an absolute need. At the last appointment before venesection my bloods were HG 158, HCT .47, WHITE CELL 13, NEUTROPHIL 9.3, PLATELET 258
Now I don't think they are all that bad but so very confused.
Any advice or just a thing I have to figure out myself. Female 69 as I know that can make a difference.