Hello fellow mpn'ers. I haven't written for a while, i do check out the posts. Maybe the lonliness I feel with this spreads out and keeps me to myself.
I was diagnosed with pv 3 years ago,it took a while, so like most of you, who knows how long I had it. I started with venesections, quite regularly. I am with my local hospital and also Guys, just as well as my local hospital has no consultant haematologists at the moment. At the begining of last year I was put on hydroxy, 1 a day, that went up to 2 on 3 days plus the occasional venesection. Then this year my haemocrit and other bloods were all fabby dabby around 41, I'd thought this was the accupuncture I was having. Then woops a few months ago it went up to 48 so a venesection plus 2 hydroxy for 4 days, a couple of weeks later haemocrit 47.5, yicks another venesection tomorrow and after having been in touch with guys up the hydroxy to 1 on 2 days and 2 on 5 days.
I am pretty miserable about it at the moment, sadly there are other stress issues I am dealing with. My ferratin is low and will get lower as does folate. This affects nails, energy etc.
Any ideas anyone about anything that can be done to lower haemacrit and up ferratin without making things worse.
Thank you everyone for being here and providing a place for sharing.