After more than a year, I fell ill with pneumonia at theend of may 2015, the specialists tend to believe that I have cmml. During this whole year, I have undergone four bone marrow tests,two of them with biopsy. I had hoped to get an appointment with a specialst at Oslo University Hospital before the beginning of the summer, but in the beginning of last week, I recieved a letter with the date of apponintment set to july 21. Which happens to be my birthday, by the way😖. Nice birthday present, as the only treatment for this condition seems to be bmt(!). I feel quite well for the time being, but it's hard to keep my spirits up right now. During this year, I also got Polymyalgia, a rheumatic disorder with high esr and crp, and a rare condition in my left knee, localized pigmented villonodular synovitis. I n march, I had a hard seizure with convulsions and uncinsciousness, so I had to leave in my driving license for at least six months. At least, I hope that I will get a diagnosis when I have been to Oslo, for over a year of uncertainty is now more than I can bear.
Last edited by Bittebitt
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