I have been to both hearings on this. The first was obvious it was going to be refused and a number of people on that team at the drug company lost their jobs afterwards. Second time around it was more positive. Prof Harrison was shut out of attending the first appraisal but not the second. I like to think I did my bit trying to make people on that committee understand what rux has done for me and others. I asked Prof Harrison if she was surprised by my experience with the drug and she said the decrease in itching was typical but I had an unusual increase in energy. Not that I am complaining.
Delighted to have been art of the story but all the credit should go to Claire and her team who have done the research and the hard yards or our benefit.
Comiserations to anyone with MF reading this who does not qualify but now the drug is part of the NHS armoury and will become cheaper and of increased use as its patent runs out.
By the way if anyone knows how Chris/Jedi warrior is doing please let me know by private message