Hi,
When we were at guys prof Harrison mentioned a link between having a celtic background & mild thalassaemia. Does anyone have this?
We had genetic tests done & I suppose this will show it up
Hi,
When we were at guys prof Harrison mentioned a link between having a celtic background & mild thalassaemia. Does anyone have this?
We had genetic tests done & I suppose this will show it up
Not heard that before!
I know there’s a link between haemochromatosis and Celtic background. I find that very interesting, as I have Irish heritage.
Hi,no I am Scandinavian without any Celtic blood for atleast 5 generations back.
My wife has been diagnosed with myelofibrosis. Though she has just had a BMB last Tuesday, so results not for two weeks+. She was tested in France and is JAK2+ she only really has high platelets, and of course now no spleen. Being a Welsh girl, she is probably Celtic in origin.
I am sorry your wife has MF. I have read your posts and you have been through so much. I am interested to know how the diagnosis of MF was made when results of BMB are still pending? All the best to you.
The diagnosis was made by a French hematologist, after a bone marrow biopsy from the sternum, though it was apparently contaminated by blood. The hematologist here said that sternum biopsies had been phased out forty years ago in Wales. We asked, and he wanted to, verify the diagnosis, which is why my wife had it done last Tuesday, with no bruising and absolutely no pain at all, during and after. Hope that satisfies your curiosity! It will hopefully satisfy ours, as she never really had any symptoms before the 1st May, other than her bp had risen over six months and she was getting a red face when she got hot. Best wishes xx
I have ET jak+ and I am Northern Irish 🍀
This is very interesting , my husbands visiting cardiac nurse told us if you have Irish ancestry you are very susceptible to PV especially, I have PV +jak2. My DNA says I am 48 % Irish, The nurse said her husband and his father, both Irish, have the condition. I wonder why?
Hm this is interesting! I have ET and I’m Australian but have Irish heritage.
I'm Scottish/Irish decent and also carry a haemochromatosis gene.
Hi I’m at least 50% welsh
Hi. My father was Irish, and maybe something else but not my mother. I’m ET JAK2+ Katie
At the London Patients Forum last year Dr MF McMullin an epidemiologist from Belfast mentioned Celtic heritage, but as far as I can remember it was related to haemochromatosis as another poster has mentioned. Very interested to find out more, I am half Irish.
I'm going to check with guys incase i remembered it wrong. There was lots to take in!
I'm Scottish/Irish/German/English decent....as far back as I have checked. Interesting!
Yes,interesting! I have ET Jak 2+ and my father was Scottish.
Wow! My ancestry says 100% Irish Ulster and I have ET Jak2+. I live in US. I am having health DNA done and will report back
I'm Irish/Scottish decent, ET JAK2+ and haemochromatosis is in the family, I'm a single carrier so can only pass the gene down.
I checked with guys and its thalassaemia thats linked to celtic blood not thrombocythaemia. Sorry for the confusion!
Thanks for the clarification on this matter.
Vicky,
This is so interesting for this is the first time I have seen thalassmasia in any discussions. This is what I was first diagnosed with and then came PV. My hematologist was asking if I Mediterranean background and not Celtic. Since I did the dna tear I do have more Celtic background and also German. Will have to be sure to follow for fighter info so that I can pass along to my doctors. Good luck.,
Sheryl