As a result of feeling encouraged at the recent Living with MPNs day in London, to keep a 'symptoms diary', I decided to ring my haematologist on Monday (which is always recommended to me should I have any concerns). This was because, on Sat 14th Nov, I think I saw about half of the whole day. I slept on the 3/4 hr coach journey on way up, nodded off 3 times in the lecture theatre at the BMA (apols Prof Ruben Mesa) then had a nap on return to hotel and finished the day by sleeping through half the play I wanted to see in the evening followed by 8 hours solid sleep. This ain't right-I'm losing not only time but my quality of life. So, spoke to a different haem than my usual who's organised yet another blood test to check my thyroid. But the bit I want to pass on is the Vit D recommendation. He suggested I take a decent strength as the lack of sunlight at this time of year can result in the drowsiness I'm experiencing (it feels more like fatigue to me) and as we are all now so much more aware of the dangers of too much sun exposure, it can result in a Vit D deficiency. So I bought a 1000 strength yesterday & am going to give it a go-anybody else take it? Just glad I rang & spoke to this guy as we can all just think our symptoms of the illnesses or meds are 'normal' when, sometimes, there can be an alternative solution. Stay well & warm, Poll X
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