Confused even more

[130396]

Oh I'm getting so confused!!! Haematologist said very rare for hydroxycarbamide to cause muscle pain.

She said it may be that I'm still undermedicated on my.thyroid meds as body needs good level of T3. All so complicated

[Hidden]

Have you been referred to Endocrinology? Having a thyroid that is not working properly can cause all sorts of symtoms in the body. It might take a specialist to sort it out for you but once your thyroid is sorted out you should see an improvement in general.

[130396 in reply to Hidden]

Yes I've seen endocrinologist. He said I am euthyroid now. But my T3 is still not optimal.

[Geoff_mpnfamily]

I get this too, but I'm not on Hydroxycarbomide for my polycythaemia, I only have venesections and I'm on a low dose asprin plus Lansoprozole.

I have noticed that anyone with an MPN can get these symptoms, and that in my opinion all treatments can cause iron deficiency, and this in return appears to incite a lot of pain and easily ache (painfully) from little exercise... I.e. hoovering or helping my wife carry shopping in from the car...

Have you noticed how it's always within 3 days? though for me it has been within 12 hours now...