Just like to introduce myself . My name is Helen . I was diagnosed with ET in May. I had come back from Jamaice and couldn't stop itching . I suppose I was lucky as a new GP somehow suspected what I had and 2 weeks late I was having a bone marrow biopsy ! I talked all the way through it and my heamatoligist got my life story. My platelets were very high and HB low . I was put on aspirin and hydroxurea . My platelets have come down to fairly ' normal' and unusually my HB went up . I have been given a 3 month appointment woo hoo . I go to Hinchingbrooke hospital in Huntingdon . It is a very scary diagnosis but I looked on it as a wake up call I had already stopped smoking and I now ride my bike more and eat healthily . I have to say I feel better than I have in a long time but maybe I'm lucky and the itching has stopped. I am off to Canada on Tuesday and the insurance honoured it . I hope the long plane journey is ok .
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