Itching

[Hughesf]

Morning all.

I have been jak2 positive PRV 2yr+ and I get on with life fairly normal given the condition.

Itching:

What do you do. I itch after a bath a shower or even if body sweats.

I've tried cool water warm water hot water

To no avail.

I'm on hydroxy 500 mg and asprin

Any help to this problem.

Frank

[PVPVPV]

I had the same problem. At a London forum, someone suggested patting myself dry rather than rubbing. It worked. It was the action of rubbing rather than contact with water which was causing the problem.

Cheers

Chris

[Hughesf in reply to PVPVPV]

Will try thanks Chris

Frank

[ainslie]

For itch I use UVB narrow band, it has reduced my itch from unbearable to almost unnoticable

[LouisePRV Volunteer]

Hi

If rubbing hasn't worked, I haven't showered or bathed for 4 years so bad was the ghastly aquagenic pruritis!

I'm assured I don't pong - extremities are fine with water so I use a bidet and basin.

If that doesn't appeal try piriton syrup.

Louise

[Splb3317 in reply to LouisePRV]

Hi Ainslie. I found this post from you. Since going back onto Hydroxy, my itching all over (even without showering or any water) has increased to the point where I don't know what to do with myself. Without Hydroxy, this didn't happen. I'm trying 1 Piriton tablet at night, and it seems to be helping slightly, but I saw your post and wondered about the syrup. Can I get that easily? What is the UVB narrow band that you mentioned? I hope you can help before I go mad!!

Sandra