Itching solution for some

[MDI55]

My battle with ET started 20 years ago when I noticed I was getting extreme itching after a shower. I have not had that issue again until now and I was trying to figure out why? I belong to Lifetime fitness and noticed I never have an issue when showering there. Then it clicked that a few months ago when the itching came back I had a new water heater with a soft water system ( salt) installed. A few days ago I shut off the softener and my itching stopped. I keep hearing from the companies that install these systems it should not cause this but it does as I remember my old house when the itching started also had a system. If you are having this issue you may want to check this out if you have a salt system . If anyone else has solutions for this itching please let me know.

[Pachena]

I have had itching after showers tho my doc said it’s often associated with hot water and to maybe finish off with a cooler shower.

It’s summer here in Oz so I’ve been having cool showers and no itching 👌🏻

[Innessant]

I doubt it is that simple...but lucky for you if it is. I had it so bad two years ago that I did not shower for 9 months.It is far less bad now but colder showers and NO aggressive towel rubbing help.IAquagenic pruritis is an an allergy caused by water and associated with PV.

[Pogm in reply to Innessant]

I, too, did not shower for many months. Washed up at the sink and still had itching. I finally started Jakafi( low dose) and it has eliminated 80% of the itching Iy has been a huge relief and if thatvis a possible pathway for you, I would pursue it!

[Pogm in reply to Pogm]

Sorry for spell errors

[Sammy_s in reply to Pogm]

Totally agree with this, my mum also had very bad itching and as soon as she was put on Jakavi, within 1 week it lessened and 4 weeks later, itch free.

[Innessant in reply to Pogm]

Thanks. Itching much diminished. I live in Thailand. What UK people never know is that Jakafi costs thousands of pounds per year per patient to the NHS . It comes off patent in two years time. I am fine with Hydroxy so far.Thanks as the condition is awful .

[ainslie]

as a former PV Olympian itcher I’ve never heard of it but if it works for you (and maybe others) fantastic , we all hate the itch monster 😀

[kamiilos]

Interesting findings, I used to be very itchy after hot showers but cold where soothing but now is opposite - cold shower makes me itchy where as hot doesn't. It's temporary for about 15 to 30min after showers, thus I don't use any anti histamine yet. I have no clue why it's happening this way.