I don't know what category my question goes under but here is my question. My lgm is 1010 (which I've already recieved help here from thanx)

I have chronic kidney disease stage 3 with my kidneys only working 40%. The tips of my fingers and nail beds turn a dusky blue whenever I get a chill ( I haven't thought to tell my oncologist/ hematologist that but I will). I had a full body bone scan and whatever they were looking for they found in my spine. Today I'm doing a 24 hour urine catch to bring to my doctors tomorrow when I go for a bone marrow biopsy (which I'm scared of because I'm scared of needles). My question is this; has anyone else ever had symptoms like this? My doctor thinks it's multiple myeloma but he won't know for sure until the bone marrow biopsy. I won't get any results until June 2nd. I'm not sleeping much at nights and I can't seem to focus on much of anything. My depression is normal for me but I'm isolating which isn't good for me. I have no friends and I got it in my head that this is cancer but thats just a word and I can't believe it anyway. Does anyone have any kind thought for me or can you help me? I have no pain and no weight loss, I feel fine...

6 Replies

  • Hi Cathylc58, I am sorry to hear that you are having such a bad time at the moment. I do think you should tell your GP and your haematologist about your fingers and nail beds going blue they may be able to do something to help you with this. I can understand your fear of needles, but I am sure you will be ok tomorrow having your bone marrow biopsy, just explain to the haematologist and the nurse that you have this fear, they will understand and look after you. It can be very scary having to wait for results to be told exactly what you have and worrying about it is a natural thing, we all do it, we can't help it, have you thought about having some counselling to help you feel less isolated? Best wishes, Maz

  • Thank you for your response and your support. I am currently seeing a councilor every week but she ended up canceling this weeks session. I will tell my doctor about my fingers going blue today. I let you know how the biopsy goes.

  • I am praying for you, may God be with you bringing love, peace, comfort and healing blessings and hold you tight. May His love and comfort help you during biopsy test and take away fear. May He provide someone to help you and to look after you in these difficult times. In Jesus name I pray. Amen

  • Thank you so much for praying for me. I have this feeling that God and His angels listen to you often and I'm so grateful for your kind words and support.

  • Dear Cathylc58, please take this typed message as a hug from someone who understands your fears - it is true, all of us get afraid at times with these things we don't understand. I will be thinking of you tomorrow (I am awaiting the same) and just know it will soon be over. Linds x

  • Thank you Linds for the hug. I hope yours is good news. Consider this a hug from me. xxx

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