Hello All has any one had intravenous Vitamin C infusions for ET?

[Seea]

[catkinspolymer]

nope sounds a bit incredulous to me but might it help if the system is a bit low.?

town crier

[Ephelia]

Who suggested you have these?

[ainslie]

no for ET but know two for MF, one says it brought counts back to normal ( sounds incredible but why lie?), second one says its sorted his itching, both are on lipo Vit C as opposed to intravenous. I have PV and am interested if anyone knows of anyone using it for PV

[Boss1]

I have been on Elderberry tincture since diagnosis of PV and I don't seem to have any symptoms (unless I bathe in the morning! For some reason, bathing in the evening means no itching!!) I haven't a clone of myself as a controlled experiment so I can't proove that the Vit C in it doesn't work so I will keep taking it.

[dorotea]

Hello Seea - I have never heard about vitamin C being taken for ET or any other of the Myeoloproli... conditions.

But would be great if it did work. I do take Vit C as a supplement against colds, etc., capsules of 1000 strength, each

day. Was the Vit C prescribed for you Seea? Dorotea

[babbittybumble]

Hello Seea, Our son has PMF , it was suggested he had Vit C Infusions monthly by a Doctor who firmly believed vitamins were the way forward.He did not take this up as he works full time and did not want to go into hospital once a month. He does however take lots of vitamins orally.

[Seea]

Hi to you all and thank you for your replies. Town Crier, yes Vit C absolutely helps if the immune system is low. Ephelia, I have not been recommended it by anyone but have read scientific evidence (studies been done) that it assists with promoting good health with many people who have cancer. Ainslee, thats fantastic, there have been incredible results had by people under going these infusions. Dorotea, good on you taking supplements of Vit C as we cannot store it in our body and need to add it to our body through food and when necessary supplements. Our body is unable to digest orally and utilise the large quantity of Vit C that is used via infusions, hence the intravenous use. Babbittybumble, what a shame he has not taken up the opportunity of this offer that has proven to have some incredible results with some peoples cancer, especially as it appears we need to be eligible for this. It is worth researching 'Google scholar' The scientific evidence will be in the form of credible journal articles that are up to date. I hope this of help to you all and if anyone does hear of an ET patient who has had or going to have intravenous Vit C infusions, please, please let me know. Thanks and more

[Hidden in reply to Seea]

Have not heard of intravenous vit c for this,

To Seea,

Did you say you have E.T. (essential thrombocythemia, or PV condition.? Our immune system wil always be compromised by the medication Hydrea.

Make a post if you have E.T., and if so how long, and your platelet count when first diagnosed.

Vitaminc C is always hlepful for the immune system, but for any impact on platelets, I doubt it, I have done much research on this. Always here to learn & pass along information that might be helpful.

Hope to hear from you.

Adail

[Felecia20 in reply to Seea]

I have ET, Jak 2+. Do you have any more info on vit c Iv for this condition?

[Louforjack]

Hey Seea I know it was a long time ago by your post. Just wondering if you have done any more research on Vit C for ET. My 17 year old son has has et for 6 years and keen to explore other treatments than hydroxy, his immune system is suffering.

[ihavegotet]

I have tried it both in IV form and Liposomal oral and neither one worked for me.