Having been diagnosed last year with PV my journey took the usual steps. Venesections,hydroxyea and aspirin. Common symptoms, itchiness,tiredness,blood clots in the feet,very enlarged spleen and insomnia. I do work full time (usually 60 hours a week) and try not to be beaten by Pv.
I have been lucky and got funding for Ruxolitinib. Now 10 weeks in I can say the drug hasn't really given me any side affects. Red cells now stable, platelets went high but now seem on the decent to a normal level.
If anyone wants anymore detail info on my progress and what this drug has done for me drop me a line.