Greetings from the Antipodes. At long last and unexpectedly I have been approved to commence Ruxolitinib/Jakavi I have PV and was previously on a Fedratinib trial. When that was terminated by the FDA I had to revert to Anagrelide and a horror 11 month stretch of bleeds apparently bought on / exacerbated by a mild case of acquired Von Willibrand disease. At long last I have been approved to commence Jakavi. Has anyone with PV and possible von Willibrands had experience of transitioning to Jakavi. All advice appreciated.
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