Paroxysmal hemicrainia

[Harleyka]

Hi everyone, I am new here. I suffer from paroxysmal hemicrainia that was wrongly diagnosed for years. The consultant told me it wasn't very comman so was wondering if any one else had any experience of it.

[Raleigh4371]

Hi Harleyka. Do you have an email

Address available? Would be interested in talking more to you about my experience with it.

[Harleyka in reply to Raleigh4371]

Hi you can contact me on [e-mail]

[Raleigh4371 in reply to Harleyka]

Thank you! I will get an email off to you ASAP.

[mayaschoen]

Hi I feel like I have paroxysmal but I’m not sure. I’ve taken indomethacin for it and it worked but I didn’t stay on it long because I was scared of the side affects. Can you please tell me your experiences? I would love to get a diagnosis after years of dealing with migraines and headaches