Relief at last. Ahhhhhh: Aimovig... - National Migraine...

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Relief at last. Ahhhhhh

Suffers2 profile image
8 Replies

Aimovig monthly shots are working for me.

No more narcotics!!!

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Suffers2 profile image
Suffers2
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8 Replies
Nonameavailable profile image
Nonameavailable

It's always uplifting when someone finds their "cure" 👍🏼🤜🏼🤛🏼

designer111 profile image
designer111

Can you explain more for us? Are you from the Uk?

headachequeen profile image
headachequeen

Yay! Aimovig is a miracle for me too. Can you describe your headaches? Mine were due to constant muscle strain and nerve overload in upper back, shoulders and neck as a result of minor scoliosis. Was taking 18 triptan per month. Now take one every few weeks, but even then the migraine is weak and goes away quickly. Even the menstrual migraine, which triptans never used to touch. (USA)

Peaches_7 profile image
Peaches_7

I've been on the aimovig since July 2018. Started at 70mg auto injector but at 3 months was upped to 140mg-2 auto injectors. i was having chronic daily migraine with migraines in excess of 25 + days per month-debilitating. My rescue meds include cambia packets- around 12 (prescribed 9 and then pick up 3 samples each month) and these cut my migraines from a 10 down to a 2 or 3. Also norco 7.5mg, and tizanidine. i recently found another preventive-migravent- which includes butterbur, mag-oxide, B2, and COq10 and is much cheaper than buying the ingredients separately. I still have to use my rescue meds but not as often. Identifying my triggers was a big part of things.

My headaches are always left side only from left eye socket all the way to the base of my neck below the occipital nerve. We recently discovered that my left eye(which im legally blind in) is high risk for glaucoma and started alphaganP eye drops to relieve the pressure/ pain. Though that offered tremendous relief im still left with the horrible head pain which somehow seems to involve my sinuses that i had surgery on after the migraines started. If i sneeze- instant migraine above my left eye.

So far the aimovig has cut me down to 15 headache days per month. which is definitely a drastic improvement from when i was on the botox treatment. And i get the aimovig for only 5 bucks a month and the Cambia for free. I think the migravent helps also but my neuro wants my headaches to be way less than 15 or we're going to try a different CGRPR antagonist since the are now 4 on the market. I'm in the US. Not sure what programs are available in the UK. But... Google migravent and if u call in the customer service number they'll give you a coupon that's a huge discount.

I'm glad the aimovig is working for you Suffers2! What is your dose and how often do you take it?

Totmom profile image
Totmom in reply toPeaches_7

Look into acetazolamide (reduces swelling in the brain and used as a treatment for galucoma. It stopped all my internal brain swelling)

Peaches_7 profile image
Peaches_7 in reply toTotmom

So did that stop your migraines completely? And thanks for the tip!

Totmom profile image
Totmom in reply toPeaches_7

Since starting it I haven't had a painful migraine but I still get abdominal symptoms. I have very high estrogen and serotonin and I am working to conquer those as well. I use ondansetron, cyproheptadine and progesterone to work on that, and if I feel a headache coming on I take a triptan. I have only needed to use about 1 per month whereas before I was using them 4-5 days per month and having a really bad day even though the headache was vanquished. Now I can take it and feel pretty good. But I am hypothyroid so that sets off a whole other cascade with the estrogen and serotonin. I had some neck inflammation this month when I got a virus that started to feel like a migraine, so I took a triptan and therefore didn't have to suffer with a migraine while I was laid up with the bug. I used to have 5-6 days of intense neck and shoulder pain which would creep up over my head and trigger a migraine by the last day of my period, and that migraine would last 3-4 days. The feeling of swelling in my brain was so intense that I couldn't move and wouldn't even allow anyone to take me to the hospital if they paid me $1,000,000.

Peaches_7 profile image
Peaches_7 in reply toTotmom

Omg. This sounds like how my headaches started, though the eye pressure and pain began before the headaches hit full force and daily. My migraines began hitting hard during my 2nd trimester with my now 4 year old and i think i'm around 25% -30% bmi. Not obese but over my ideal weight. thank you so much i will definitely bring this up at my next neurology appt if not before. i have another glaucoma screening in 2 months.

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