Its been 7 months now, since i was diagnosed with VM.
I have had to say this has to describe it as roller coaster of a ride with the NHS.
From experiencing Visual Disturbances, black outs and head aches for all this time, pain in my joints and in my body, at last they refered me to a neurologist.
As the hospital did not do an LP the evidence to the doctors or whoever has treated me has been inconculsive,but the doctor who saw me at the hospital released me with a letter stating symptoms of VM. So i have been utterly confused by the NHS and their opinions ever since.
I feel let down in everyway,also made to feel like i am making all this up.
The neurosurgeon i saw refered me for a full brain and spine MRI i had this done yesterday.
I did not manage to complete the whole scan as being lay flat and still my head in a cage like contraption, the noise and pain became overwelming, at that stage i had been in the MRI machine for 50 minutes. I came home and slept on and off until today, mentally and physically i feel broken again.
I'd like to know if other people are having the same problems with sound (noise) whether it be people talking and other background noise or simply the television getting too much. I have visual disturbances, white and purple stars and dots and increased floaters in my eyes also a veil of shadows? i have had my eyes tested they say the health of my eyes is fine, i was even tested for glaucoma.
I still ache in all my joints, knees and hips and shoulders (under arms) mostly.
I know i'm making my husband sick with worry as i am usually a very strong person, but frankly i'm not even half the person i used to be.
The Meningitis Trust have been fantastic, offered me all kinds of help, i cannot thank them enough.
It seems this site can help a lot in regards to letting eachother know where we are up to whether we have the same complaints??