26 Months post VM: I am 26 month post VM. I... - Meningitis Now

Meningitis Now

6,772 members2,107 posts

26 Months post VM

9215 profile image
9215
2 Replies

I am 26 month post VM. I have a history of Extremely painful Migraines for 8 years. I always end up at ER by day 3 with migraine headache. I was always given Demoral and Vistaril to relieve my pain. Stayed in observation for 6-8 hours then released. Migraines stopped in 1987 after receiving Acupuncture in my right eyebrow.

Migraines started again about 5 years ago, but not as severe until August 2016. Went to urgent care day 3 of Migraine, on a Friday, RX for Norco then told to see my Primary doctor on Monday which I did because pain was still present. she gave me a shot for the pain and nausea. The next day went to work for a morning meeting, by 3pm I started talking but not making any sense; I told my staff "I feel strange I'm going home. Got home at 3:34pm, my husband helped me to lay down in bed. No sooner he closed the door I felt as though my head exploded. Immediately I was having the worse severe pain I couldnt open my eyes. He took me to ER, they said it's just a Migraine. NOT!!! Tried Diaudin, Morphine, Norco. Nothing eased my pain, I was crying so bad which made it worse.Did a CT scan and Spinal Tap at 3:00am, results menegitis. Now they know why I'm in so much pain. I told them to give me DemoraI but they said that it's only given after surgery. I was immediately quarantined for 7 days enduring head pain level at a 15 out of 10, yes that severe. I was barely alive by day 4, on oxygen, my lungs were bad, i could not urinate thus had to be catheterized, which stayed for 2.5 weeks. My pain level was off the charts, given pain meds, combo of dilaudin every 2 hours, then Morphine followed by Norco. Since it was VM not BM I was sent home on day 8 with Norco and Morphine to be taken every 4 hours. By day 11 the pain started lessening to a 7, each day thereafter it eased up. Took 6-8 weeks to get to a 3 out of 10. Recovered but My nerves are shot due to extreme pain. I fear having that pain again so much I have panicked attacks, with severe depression. I now see a Therapist.

I went to bed at 11pm after taking pain meds for headache, woke up at 5am due to headache. Took 2 500mg of Tylenol at 5:15am and at 11:30 headache is back.Another 2 Tylenol taken since I hadn't eaten. Finally at 12:30pm the pain was coming down.

Now 6pm headache with nausea.

I'm so scared that VM might come back. Do we really get better after the effects of VM?

Written by
9215 profile image
9215
To view profiles and participate in discussions please or .
Read more about...
2 Replies
RHB2016 profile image
RHB2016

I am so sorry you are having this much pain. I am post vm and encephilitis a little over 2 years. Since I had swelling of the brain i never knew anything. But since being home and started having migrains last last year. Lasted 9 weeks! I think maybe it was a flare up of vm again. I have panic attacks and almost like ptsd of getting it again. Do we ever get any better? I'm not, but I am 68 years old now. I hope you feel better soon.

9215 profile image
9215 in reply to RHB2016

Sorry it happened to you too. I agree my Migraines feel very close to VM pain.

You may also like...

22 months post vm 35 female

Head pain, prior to this illness I've experienced migraines and what I'm left with I call head...

Fatigue 7 months post VM

hospitalised in June for 9 days due to VM. Ever since I have had periods of extreme exhaustion to...

VM symptoms after 12 months

degree of pain and reaction time when the brain starts to be effected, from the day to day work...

3 years post VM

Hi everyone, About 3 years ago now I was told after my week long stay in hospital and numerous tests

Tingling and numbness post VM

been slow but good and I'm beginning to have more days of feeling well and normal again... A new...