Hi there, I had viral meningitis on October 2012. I am currently working full time in the education area. I am experiencing some crushing fatigue and brain malfunctioning at different times. Usually when I am not so busy so the adrenaline doesn't keep me going. I have suffered chronic migraines post meningitis for four years now but the 3 monthly botox, now in its second year is incredibly effective a lot of the time. However, I am wondering how long I can work like this. I am 47 and cannot imaging being like this in ten years and still working full time. I think the disease has done something very profound in the energy production department of the body. Its just so common with vm survivors, they all say the same things about exhaustion and fatigue. I suspect there is potentially a ten year turn around from a serious disease. I had a characterised' very severe' version of vm. Hence, four years later still struggling. I think it will be better in another 6 years or so, but that its realistic to expect ten years of symptoms. What do the rest of you think? I just experience profound fatigue at a metabolic level at different times during the week. I have to sleep about 9 hours a night or it goes to hell in a handbasket.
If I don't sleep enough, I have serious brain fog and low blood sugar feeling. That makes me want to eat a lot too. Also, I cannot surf like I used to as the hold downs under the water make me too fatigued that its dangerous. If I get exhausted out in the water, I cannot summon the energy to get away and paddle to safety in time. So, I can only go out when its very small and calm, so that I don't drown. ITs like the body is out of energy.
The only way I can improve it is to go small amounts of exercise regularly and not a lot in one hit. This impacts on going to the gym as well, cause if I over do it and then work a lot it ends in exhaustion. I just wondered if anyone has heard anything from drs about energy production in the cells? I think it happens at a mitochondrial level, and if so, what might have happened during the disease duration?
Or is it mimicking a brain injury, where you experience such fatigue? the thing is, this is not a typical brain injury and there is no MRI recognised damage on the scans. No scarring, nothing. So.... why does it keep happening? I want answers.