Hello everyone. I am a 48 year old male who would like to share my story. I had just moved into a new Townhouse with my roomates which are more like family to me on August the 23rd of 2009. Everything was going fine, we loved the new place and i was going to start a new job that i was all excited about. Well here it goes.....On july the 2nd i woke up with a terrible head ache and had flu like symptoms. I really didnt think much of it because usually the flu goes away within a week or so. Things just started to get worse and worse. I was always vomiting, lost my appetite, i couldn't hold anything down, my body was in so much pain, i could not stand bright light, had a high temperature, my head felt like it was going to explode, i had a stiff neck that just wouldnt go away. And OMG the headaches that i was getting brought tears to my eyes. After 2 weeks i had lost over ten pounds and was so weak that i could not even get up to go to the bathroom without help. After about the 17th day of being sick, i thought i better go to the hospital because i then knew that it was not the flu. With the help of my wonderful roomates i was able to get dressed and get to the hospital. They did all kind of tests including a MRI and a Ct Scan. They found out i had a kidney stone, i was like ok but ive had kidney stones before and they never made me this sick before, infact i never did really get sick, just lots of pain. And i told them that there has to be something else going on with me. But said they could not find anything else. So they sent me home with a prescription for pain pills and antibiotics. 4 more days had gone by and i felt like i was going to drop dead, so i went back to the hospital even though it was very hard for me to get out of bed. Again the same thing happend they ran tests and said that they could not find anything wrong with me, i was so pissed off and said how can there not be anything wrong with me when i feel so sick. They just changed the antibiotic and sent me home again. I went 2 times more after that and guess what? Same story. i told them that my temperature would not go below 102 and was going up as high as 104 and i was vomiting all the time. It was like OMG those Doctors are a joke. At this point i was just so weak and sick all i wanted to do was go back home and lay down. 2 days later i started to feel very confused and by the end of that day i couldnt even remember my name. So one of my roomates called the ambulance for me. After that i dont remember anything else. As i was told when i got to the hospital they ran more blood tests and ordered a Spinal Tab. I dont know why they didnt do that in the first place. And low and Behold i had Meningitis and admitted me. My god it took me to go in 5 times before they figured out what was wrong with me....unbelievable. I was placed on all kinds of IV'S and was severely dehydrated. I was like in a comma i was asleep for 4 days without waking up once. When i finally came too, i was so confused i didnt know what was going on, all the nurses and my visitors had masks on which kind of freaked me out. Finally the Doctor that was treating me told me i had Meningitis they just didnt know yet if it was Viral or Bacterial. 2 days later they said that is was Viral then the next day they said it was Bacterial. Then back to Viral. Frankly if you ask me i dont think they even knew which i had. He also told me that if i hadn't gone in when i did that i more than likely would have died. That's when i blew up and told him my god i came 4 times before and was just sent home. All he could say was that he was sorry to hear that. OMG! i wonder how many people have died from being missed diagnosed. It's really scary if you think about it. I stayed a total of 16 days in the hospital and was discharged. I was told that i would start to feel better in a week or 2. and to follow up with my primary doctor. Well the 2 weeks went by and i didnt feel at least a little better. I called the hospital and they just told me that some people recover faster then others what they didnt tell me is that some people never fully recover. 4 months went by before i had the strength to get out of bed and make it to the doctor.By then i lost over 60 pounds. I told him about everything that was going on with me. He sent me to a neurologist, to see a Psychiatrist and to get a another MRI. Its been over 4 years now and i have been diagnosed with severe agoraphobia, panic disorder, vertigo, tinnitus, severe depression and paresthesias: tingling in my hands and feet. On top of that i still am very sensitive to light, feels like my head is going to explode and have terrible headaches. my short term memory is really bad, and i get very agitated at times. Bottom line... it has ruined my life in every way a life could be ruined. I have had to apply for disability, cant do anything or go anywhere without getting sick.What i miss most of all is my job, i used to be a Certified Nursing Assistant for 23 years and i loved my job...just knowing that i was able to make a difference in someones life and to care for them as if they were my family...was a very rewarding job to me. It's been very hard for me but I have had to except that my life will never be the same and try to make the best of the life i have left...if you could even call it a life.My heart goes out to everyone who has had this devastating illness most people dont understand how life altering meningitis can be. God Bless All Of You
Last edited by sadinsd
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