New patient

[RDRR]

1.5 weeks ago diagnosed with mengioma. Have appointment with neurosurgeon in the next few weeks.Can anyone give me a idea of what to expect with surgery, etc? I would really appreciate it!

[nidhi123]

Hi, I am Nidhi from India. I diagnosed with Atypical Meningioma Grade 2 in 2020. The tumor was 6 cm in size, located in parito-occipital lobe. It was invaded in brain. The surgery was quite complicated.Fortunately due to experienced doctors my surgery was successful. Further i went for Radio surgery. It took one year for me to recover from the entire treatment.

At present I am perfectly fine. Joined to my work again in 2021. I also completed my PhD during this period.

Just be positive, trust your doctors and have faith in God.

[Shade1 in reply to nidhi123]

congratulations 🤗🫶🏽❤️

[Cast_away]

Hi I was diagnosed with a large Meningioma Tumour which needed emergency surgery in September 2022. Surgery was complex due to swelling and took 15 hours. Thanks to skilful neurosurgeon I have made a full recovery but still being monitored. I am going for my 6 month MRI scan today and must admit am experiencing some scanxiety today but I remain positive.

The surgery has left very little scarring (incision mostly in hairline) but I do have numbness to my scalp and on side of my face.

The Tumour was grade 1 so there is only a small chance that it could recur and other than monitoring for the next ten years, I am hopeful that I will not need radiotherapy or further surgery.

I understand the anxiety you may be feeling but depending on the size of your tumour you may just be on a “watch and wait” approach as these tumours can grow very slowly. If you do need surgery the skills and care of your neurosurgeons should not be underestimated - I am endlessly indebted to my surgeon’s expertise and care.

My best wishes to you - you are not alone and are in my thoughts ❤️

[Emz8311]

I was diagnosed in June last year with multiple meningioma tumours, had surgery to remove 1 tumour 1 month after diagnosed, i was in theatre a long time about 8/9 hours but it went smoothly and my recovery was straightforward, i wasent in any pain the only thing I would say was the fatigue was something else, good luck on your journey I hope it goes well 😊

[Maddie_TBTC Administrator]

Hi RDRR,

Thank you for reaching out to the group, I am sorry to hear about your diagnosis.

On our website we have a Step by Step interactive guide which walks you through what to expect at each stage after a diagnosis. It includes a section about neurosurgery, including what happens before and after surgery. You'll also find questions to ask your healthcare team, suggested actions for you to take and useful resources for you to explore. You can read this here: thebraintumourcharity.org/b...

We also have a free Brain Tumour Information Pack which is full of useful knowledge, from practical advice to tips on where to find the best support. It includes information about tumour types and treatments (including a bit on neurosurgery), what to ask your medical team and important things to consider. If you wish, you can request a pack by going to this page: thebraintumourcharity.org/b...

I hope this helps, please don’t hesitate to get in contact with us anytime you have any questions or just want someone to talk to. You can email us [e-mail], or call our information and support line on 0808 800 0004 (Mon-Fri, 9am-5pm).

Best wishes,

The Support Team