ONSM

[morehealthyme]

I've been diagnosed with an Optic Nerve Sheath Meningioma which is currently contained within the orbit. Thanks to a very good optician. I have restricted vision in that eye according to the tests but I can't really tell. I chose active monitoring over radiotherapy (VMAT). This was because I felt that there was no benchmark and they didn't know if or how fast it was growing. This was in Oct/Nov and I have follow up scans and eye tests in April. So, I'm waiting ....... and thinking!

I am now very aware of my sight and I recognise that sometime my vision in that eye is variable and notably worse than the other eye, then if I cover the good eye and wait a bit to focus it gets better again. Almost as if I have to concentrate to get that eye to see more clearly and if I don't my brain relies more on my good eye. Does this makes sense? Is this typical? what would be a clear indication of my eyesight changing and the tumour changing? Is there something I can do to monitor my eyesight?

These are questions that came up after seeing the Oncologist but I don't really have a route for directing questions before my April appointment. Should this be my GP?

Thank you in advance.

[Lytham]

Hello, im sorry to hear about your recent diagnosis, I have restricted field of vision in one eye after an operation to remove a meningioma behind it but I think my problems stem from nerve damage after the op so I cant really say what yours is but I would go and talk to your gp as I know only too well how you can drivedo yourself insane wondering, good luck

[peaches2]

Hi there, join meningioma uk on facebook. There will be somebody there that will share their story with you xx