My baby undiagnosed

[Goldfish19]

Hi everyone nice to join this platform and get an insight of everyone else’s experience with special needs . I have a baby who is undiagnosed with complex needs and currently I need to get respite care but unfortunately there are shortages of domiciliary carers, any advice or other services would be helpful. If there is anything that can benefit us would be useful to gain knowledge about and take on board.

[Jofisher]

Try mencap helpline your social worker should advise if you have one. Your local council help point information desk or your G.P.

[Jofisher]

I hope your getting practical financial help ? Have you also tried the children and family centre as they can be really helpful.

[Goldfish19 in reply to Jofisher]

Thank you for the information very helpful I’ll try the helpline my social worker is trying to help too 😊

[Jofisher]

That’s good good luck with everything don’t forget the carers association for you and they do a health and well-being fund for you to have a short break or whatever you enjoy doing

[Jofisher in reply to Jofisher]

Also for funding for things try Joseph row tree fund and the family fund.

[Goldfish19 in reply to Jofisher]

Thanks so many options I’ll have to create a list very helpful 😊

[catthecook]

You could also try Action for Children who can give both advice and financial support if/where needed

[Goldfish19 in reply to catthecook]

Thank you will do 😊

[Salah11]

Hi, also try Contact A Family.

[Goldfish19 in reply to Salah11]

Thanks 😊

[1946timmy]

We used to do respite fostering( not sure if it’s still available) this was often anything from 1 day/night to a few weeks depending on need. Sometimes babies with complex needs. Worth asking .

[Goldfish19 in reply to 1946timmy]

I find it so hard to leave my child I feel I am attached

[1946timmy in reply to Goldfish19]

I can totally understand my adult son is Autistic and Epileptic. One of the babies we did respite fostering had extremely complex needs. It may not be right for you. But good luck finding some help/support.