Another clinical trial resource - Melanoma Caregivers

Melanoma Caregivers

Another clinical trial resource

strawberryjam profile image
1 Reply

When my sons treatment stops being effective, I

start this rather panicked roller coaster ride of seeking new treatment and clinical

trials. It’s just how I handle

things and move forward I guess . I need to feel

that I have left few stones unturned . My last search was in May. Today I got a followup call

from the National Institute of Health clinical

trial search folks and I was reminded of how kind and helpful they had been .Like with Trialjectory, there is person to person support and follow up. Their contact number is 1 800 422 6237 and you push the third prompt for clinical

trials. The people who call back are NIH employees . Their follow up calls, to ask me how things were going and if I needed additional help, were nice- I felt supported and heard. Just another resource for you , should you ever need it. Sending good wishes to all.

Written by
strawberryjam profile image
strawberryjam
To view profiles and participate in discussions please or .
Read more about...
1 Reply
missyrand profile image
missyrandAmbassador

That’s outstanding follow up from the CTN. Thanks for sharing your experience. Missy

You may also like...

Clinical Trial screening visit tomorrow

screening initiation for inclusion in a Stage II Clinical Trial for Melanoma at Virginia...

TIL Clinical Trial start delayed

Turns out the Clinical trial company needs one more vial of blood and for it to be processed prior...

Adoptive Cell Transfer: Tumor Infiltrating Lymphocytes (TIL) clinical trial underway from my spouse

active steps for this treatment protocol. Learning that working in a clinical trial means all T's...

Radiation targeted and tumor Infiltrating lymphocytes (TIL)

contact NIH because the shoulder has the largest tumor load, and I don't want it removed if we need...

Return to Work blessing

Coolibar. Scans on June17 will inform us as to how the TIL trial is affecting the melanoma,...