B12/ bloods

[Jan87]

Anyone has had B12 level of 1500 and using a b12 spray and has had injections with that level? I think I am B12 dificent but using a B12 spray for over two years as I have ME/CFS. The neurological issues and cognitive issues are getting worse and now my vision and hearing is effected.

Doctor won’t give me injections because my level too high. I tried explaining that the B12 could not be going into the cells but he won’t listen.

My homocysteine level is high too.

I have stopped the B12 spray now the last few days for a true reading but it takes four months to get out of your system.

The doctor says I need anti depressants!!!!

Need advice.

[carer999]

Jan87 My B12 is at that level because I have B12 injections. Were your levels of B12 tested before you started using the spray? I have injections as I was below the minimum range in my B12 blood test result.

I know people on the Pernicious Anaemia Society part of Health Unlocked whose less enlightend GPs have stopped their B12 injections because of the high test result

Some members self inject as they have been refused further injections or they need more frequent injections than every 3 months to feel well.

Have a look on or even join their forum for more information. healthunlocked.com/pasoc

[Jan87 in reply to carer999]

Hi

The last B12 blood test I had before I started using the B12 spray was in 2009 my b12 then was 413 and I got diagnosed with fibromyalgia in 2009 and CFS in 2011, after that no B12 was taken till I was on supplement B12 spray in 2017 and it was 751 and then in January it was 1500.

I had my bloods done privately in January I can’t afford to gave them done again and I came off the B12 spray for 14 days for the bloods to be done but have stayed off the B12 spray since as trying to wait four months to have another B12 blood test done if can wait that long as starting to feel exhausted like I did on top of everything else.

I can show you my bloods if you can understand them?

I can’t self inject till I have first B12 injection and at this level doc won’t. I am looking at asking doc for a B12 blood test before May to see levels dropped I don’t know if should or not and I am loosing weight too.

Thank you I will do.

[carer999 in reply to Jan87]

I think you should post your blood test results on the Pernicious Anaemia Society part of Health Unlocked. There are people there much more knowledgeable than myself. I post there when I need help with understanding test results.

[Jan87 in reply to carer999]

Right ok I will do thank you.

[Rose-Rose-Rose- in reply to carer999]

Have a look on Dr Sarah Myhill’s website about B12. Very useful information and stops my worry of B12.

[Jan87 in reply to Rose-Rose-Rose-]

I have done but it’s complicated as I can’t understand it all.

[Rose-Rose-Rose- in reply to Jan87]

I’m with you there! It takes a lot of reading to figure it out. From what I understand Dr Myhill‘s view is that CFS/ME Ppl All benefit from B12 regardless of what the tests say. She recommends self injecting every day for a month and then lessening the injections according to how you feel. Tablets and through the skin (can’t remember the name for this!) Don’t work nearly as well.

I injected for a month every day and now inject every other day. My energy went up after about three or four weeks .

She says that the only way B12 can be dangerous is if you drowned in it in a bath!